My husband has a gbm grade 4

Hi Glen I was put on injections for 6 months tablets were mentioned but never confirmed. I guess that will be determined at my next review. 

If you experience any bruising from the injections I.found ththat Arnika Cream is very good for disipating the bruising. Just rub on the bruising morning and night. 

Like you I.am deliberating over selling the car

Stay safe

Regards 

Tony 

Tony

Wow, six months of injections,  are you on chemotherapy as well. 

Thanks for the tip on the bruising. 

The car is a big issue for me, but I can't justify it sitting there not being used.

Got a blue badge last week,  just needed a letter from the oncologist nurse to say my mobility is going to get worse. 

You don't have to say, but how old are you.  

Hoping for a few more years

Glenn 

Hi Glen not oon chemo they decided to withdraw that before it started due to the virus and imunity

 My age is 67 going on 68

The blue badge is a good idea.

I do miss the freedom and independence of driving though.

I.am active about the house and to an extent in the garden. I have an allotment which I have reduced my normal physical activities fortunately a. Neighbour has joined me this year he is keen. to. help so it works out well.

I am walking every day to build my strength back up

I attend. Addenbrooks are ryou at the same hospital?

Stay safe stay positive 

Best regards 

Tony

Tony 

I get the independence bit, it's all a bit new relying on my wife.

So you have an allotment,  that's a challenge,  I bet your glad the neighbour is helping out.

I am also trying to keep active around the house, and am just about cut the grass in the back garden. 

I am just back from queens hospital in havering,  east London,  after my 2nd session of radiotherapy.  Not near you.

I have lost about 4K in weight, probably down to not drinking alcohol. I do keep an eye on my weight every day.  

Take care

Glenn 

Hi all,

I am deeply sorry to hear all your stories. I felt the very same way a year ago when my mother was diagnosed with glioblastoma grade 4. I was lost and depressed. Admittedly, it makes me stronger day by day because I had to fight the disease with my mother.

I blocked all the negative thoughts and fought with her until the day she went in coma. Gradually, the tumor took over when chemo was no longer working.

During her last couple days, she was bed bound because she lost the control of bladder. Peacefully, she left us. Her birthday is next friday. Stay strong and positive. Do not let this disease break you.

big hugzzz

Hi Glenn,

You are such a strong soul. My mother was 57 and diagnosed with glioblastoma grade 4. Her tumor was inoperable; therefore, she started the treatment with radiology. It was 5 weeks treatment and she lost a lot of weight. then started her chemo. She slowly gained her weight back!

She did 2 hours of exercise everyday. One early in morning and one before dinner. It keeps her spirit up. I hope your weight will be back to normal once radiology is over.

Cheers,

yenphi7

 wow, 57. that's no age. I am glad she gained her weight back, all down to exercise i guess. how is your mother doing now ?, is she still steady on her feet, any side affects ?.

Cheers

Glenn

yenphi7

 Please ignore my last reply, I have just read your original post, I am so sorry to hear of your mothers passing. stay strong and be positive.

Regards

Glenn

Hi Glenn and Tony, 

So sorry to read that you are both living with glioblastoma and all the awful things that go along with this. 

My husband was diagnosed last year in August when he was 49, he was 50 recently. He's been through the surgery, radiotherapy and chemo and is now on monthly chemo. He's doing ok except for extreme tiredness. 

I was reading your posts about struggling with what to do about your car. My husband had the same issues last year but he decided to sell his car almost straight away after diagnosis as he didn't want it to be a  reminder that he couldn't drive it and he hasn't ever regretted it. He did find the lack of independence an issue but since then has been too busy fighting and managing the effects of the treatment. 

Love and Best wishes to both of you and I hope you keep well and keep fighting 

Hi LC50

Thank you for your support, 49 is no age to go through this illness. 

I appear to be going through the same treatment as your husband.  How far into the six months of chemotherapy is your husband.

I was looking on line this morning to see how much I could get for my car. It will be a wrench,  but my mind is made up, it has to go.

Glenn