GBM left parietal

Hello Pollysister,

I'm sorry to hear about you sister's situation. Also sorry to hear that your family was already affected by GBM. Not the experiences anyone would ask for, but maybe they will give you some clue of what this type of cancer can bring. How has she been coping with treatment so far?

I am not a carer, but a GBM patient myself and my tumour started in left temporal lobe and has been resisted to every try of treatment, so had to stop with it, but I hope the path of your sister is taking a different direction. Brain is such a riddle, so hard to tell what to expect. I guess the location and possibility of resection has huge impact as well. I know this site has some section especially for carers, so maybe it would be helpful for you to get in touch with them, but I am here if you'd ever want to talk more about this journey.

I wish you strenght and courage in fighting this battle, my thoughts are with you and your sister, sending good vibes.

Ana

Hi,

My son was diagnosed with GBM 4 left temporal lobe 2013 and is still doing ok.  He's home with me now but remained in London and went back to work for a while.

Initially treatment was debunking, radio and chemo.  He has not had any further treatment and no longer wishes to go for scans.  I had to get the Mental Health team involved a couple of years ago and he was prescribed meds to calm down paranoia he was experiencing. Apart from that, speech problems and a few personality quirks which are funny more than upsetting he is fine.  

He needs assistance with some things as would be expected but doing far better than prognosis also.

This is our experience and all I can say to you is focus on the positives on a day to day basis.

My heartfelt best wishes to you all xx

Thank you for your reply. Time will tell for us. I wish you well and am here if you need a chat x