Hello my dad is 89 and was diagnosed 24th September 2019 with grade 4 glioblastoma after having a siezure. They cannot operate and have advised palliative care only. He has been on anti siezure meds and steroids and doing well ie still walking and totally self sufficient. He had a huge siezure on 27th dec and was put on end of life palliative sedation , we were told he had hours to days to live . However after 3 days he was still with us . The drs lowered the sedation slightly and moved him to a hospice. He has slowly come round more over the last few days and to a stage where with a nurse helping he was eating and drinking today . Which is great . However time frame wise we have no idea. He was originally given 3-6 months with no treatment. The tumour is in the middle of his head and about 4 cm big .We dont know if he can still walk at all the physios may see him next week to assess him. His short term memory is also really bad since this siezure. He is more asleep than awake but everytime he wakes up he is asking , where he is, is this a hospital? what's wrong with him, is he dying etc. We think when he wakes up after a nap he thinks its a new day.
Has anyone got experience of this or know how long he could have left?
