Hello All :-)
I wish you all a good day.
I chanced upon this forum while browsing through Glioblastoma, so I thought to share my story...
Personally, I am diagnosed with Grade 4 brain cancer , Glioblastoma on 28th August 2019.
it all happened so fast. I remember experiencing dizziness and nausea during the first week of august, however all my doctors just brushed it aside as BPPV (Vertigo). After 2 weeks, I had to seek help from an ENT as I couldn't walk straight without falling, and I was feeling so exhausted by noon time. It was a rough period for me as I used to be so active. The ENT, luckily booked a MRI for me at the nearest hospital, and from there, I was told that I had a mass in my brain.
I had to undergo surgery to place a shunt in me as the tumours in my brain were blocking the liquid flow, thus there is very high pressure in my head. The doctors described my pressure as poking a straw through a water filled balloon. When they poked a hole in my head, the fluids splurted out.
They did a biopsy on the largest tumour, and thats where I found out I had Grade 4 brain cancer. Honestly, this scares me, as they told me that it wasn't curable, but only with treatment, they will be able to prolong my life. They didn't want to operate on my as all 3 tumours were located at places which is risky to operate, etc : the brain function which allows us to wake up.
Currently, Im on a 6 weeks radiotherapy + Chemotherapy (oral tablets - TMZ), and honestly I do not have much side effects other than the severe hair loss I'm facing right now.
I was told that the median life expectancy is 14-16 months, and it scares me as I am only 23, theres so much to see and do :/
I had so many things on my bucket list that I need to check off! So I am going to try and check those off one by one!
I am going to stay strong, and hopefully my review in 3 months will show good news! I hope everyone of you stay strong too! :)
Ciao xx
