Hi all,
Son of a 63-year-old woman diagnosed with GBM in October 2017.
As you will all know, the doctors on the NHS prescribe the standard of care (SOC) treatment - surgery (if possible), followed by radiotherapy and chemotherapy (6 months in our case post-radiotherapy).
They also admit that ultimately, this treatment has limited efficacy. But they do not offer any treatments beyond the SOC on the NHS. Anything else, as they will tell you, is 'unproven' and therefore they won't recommend.
Given that we don't have time to wait for proof of efficacy (as determined by NICE or FDA guidelines), it seems logical to get whatever treatment has some evidence of effectiveness - even if it's not universally effective.
I thought it might be nice to use this post for us to share our knowledge of non-SOC treatments that are offered either through trials, or privately. These, for example, could be:
Where possible, please also provide advice as to
As this is a UK forum, UK sources for these would be especially useful - though please provide examples of where these can be obtained abroad too, as this may be an option for many of us.
I'll add a couple that I am aware of.
Oncolytic Virus Trial
Immunotherapy
Repurposed Drugs
Technology
Hope that helps to kick things off. Will look to add more as I discover them but please do add your own, hopefully we can create a useful resource here.
Hi and welcome to the online community
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