Follow up SACT chemotherapy after gallbladder cancer

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Hi, I just wanted to post about taking capecitabine tablets as adjuvant chemotherapy following a successful gallbladder removal (and liver resection) for Stage 2 gallbladder cancer. I was very anxious about going on to the chemotherapy tablets after such a successful op which removed everything with clear margins, and I struggled to find reassuring experiences when I searched on here. I was advised by my oncologist to take 8 cycles of capecitabine tablets, but I read the leaflets and info re side effects and was really worried about how I would deal with the tablets and whether I should do it or not. I am now almost halfway through (finishing 4th cycle) and so far have had almost no side effects. A little fatigued but that is all. I realise I am very lucky and many other people have very different experiences, and also that things may change for me - but I just wanted to post a positive update in case it helps someone about to start on capecitabine x

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community, and I wanted to thank you for taking the time to post about your chemotherapy experiences. I'm sure others following along will find it reassuring.

    You might also like to put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • I am so glad to have read this - my husband had bile duct cancer removed by whipples procedure but advised adjuvant chemo which he starts in a couple of weeks dreading it 

  • Hi Lou7, best wishes to your husband and hope his recovery is going well. It is a scary thought to start chemo and worry about how it will feel and how your body will react, but all I can say is be positive and the medical team will keep a very close eye on him and will quickly adapt the treatment if he is not tolerating it well. I have found exercise has really helped me during this period, mostly walking (in the rain!) as I build up strength slowly again. 

  • Good morning i was originally told that my operation had been a success and surgeon felt he had got everything. However now been told that they have found a different type of cancer in tumour and also it was found in one lymohnode during histology. I have to go to velibdre hospital monday to see a specialist oncologist. I am very scared . Any advice would be very much appreciated please thankx 

  • Oh I'm so sorry to hear that Amanda, it is such a rollercoaster journey, one minute you're thinking all is ok and then you're back to thinking the worst. All you can do is listen to the oncologist and follow their advice, hopefully the chemo will do what it needs to do and you will be back to feeling more in control again very soon. I am now on round 6 of my capecitabine tablets, starting to get a few side effects now but still all dealable with (especially after we've recovered from such a major op). Sending you hugs and positive vibes for Monday x

  • Thank you very much indeed you are right this is certainly the most difficult thing ive ever experienced in my life. I have every faith that the specialist i will see will be able to help me. Thank you for your kind words and i will let you know what they say. Its nice to speak to lovely people who understand how difficult things can be dealing with gbc.

    I must say i do feel much better now and im only just over 4 weeks since op. Good apetite. Seem to be ok eating  with no gallbladder and managing to walk better each day. Take care and thank you again