Hello I have very sadly just lost my Mum to gall bladder cancer .
She was taken into hospital on new years eve with suspected gall stones but was diagnosed with end stage cancer two days later.
Sadly they said chemo wouldn't be an option as too late.
A stent was inserted to help with pain.
She was sent home a month later and we organized care but my 84 year old Dad sadly couldn't cope with the in between times so hospice stepped in and she went into their 4 bed ward for roughly one week
It was so lovely and Mum seemed to be happier knowing she was being looked after and her pain was managed.
However we were told she couldn't stay indefinitely and maybe a care home would be able to take her in with 24 hour care.
We found one nearby and she was admitted.
She spent roughly 10 days there .
Her final 48 hours were awful ...terrible pain management she was in pain every time we were there and they took ages to attend to her .
They would leave food and drink for her by her bed but by this time she couldn't lift drinks herself and hadn't eaten for weeks.
Her last day was truly awful and my poor Dad had to witness his lovely wife in excruciating pain ...literally screaming.
Hospice intervened on the Monday and asked for a syringe driver to be given .
We called in on the Tuesday and it still hadn't been sorted.The nurses were so unatentive and didn't seem to know what to do.
Again so much pain and discomfort.
She passed away early Wednesday, we were told the syringe driver was due to be fitted that day ....too late!
Has anyone else experienced this ?
I am in total turmoil and can not let this rest.
The overwhelming feeling of letting her down is excruciating.
What can I do ?
Hello Meep247
i am Brian, one of the Community Champions here at Macmillan. I have just noticed your post has gone unanswered, so by me replying it will be "bumped up" to the top of the group and I hope seen and answered by other members of the group.
On a personal note please accept my condolences on your loss and I am so sorry to read about the way your mother was treated towards the end of her life - there is no excuse for that to happen.
On the community we have another group you may wish to join for ongoing support and the link to this is here:
Bereaved family and friends forum
Please do join this group and either copy and paste or repost this post on the group - I am sure you will receive plenty of support - there is also our Support Line for you on 0808 808 00 00 (8am to 8pm 7 days a week).
If I can do anything else for you please do let me know.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
