on March the 4th my world started to become complicated. From out of the blue I experienced horrendous abdominal pain, no warnings, rushed to hospital. Had to have a cholecystectomy. On coming round I was told my GB had perforated and sent home after a few days to recover. On the 22.03.24 I got the call back to hospital to get the shock news… they found cancer. They said they had taken it all away and at the MDT it was decided I would have 6 months of Chemo.
My first appointment at Christie’s I found out that the perforation was so bad part of my GB had embedded in my liver and another in my intestines. But after CT scans I was allowed to start the oral chemotherapy Capecitabine. I had abdominal pains for most of the treatment but had CTs and MRI which confirmed I had no cancer and it was probably to do with non cell regeneration stopping me healing properly.
After 6 months of, at times, horrible side effects (I pushed through them so I could be free) I took my final dose on 10.11.24. My end of treatment CT scan was booked for 29.11 and final consultation on 12.12. I was shocked enough to find I had a pulmonary embolism at my CT scan but that didn’t come close to the consultation where I was told the cancer was back. As it’s recurring there is now no cure and people in similar circumstances have on average 9-12 months. It felt like they weren’t talking about me….
I start chemotherapy Cisplatin & gemcitabine with immunotherapy in January and as long as it works to keep the cancer contained, I can carry on with the immunotherapy after the 6 months of Chemo.
The strangest thing is that i don’t feel like I’m dying or going to die. I hope that that is in my favour and that a positive outlook/attitude will be my extension to the average prognosis.
Has anyone got any other tips to help?
