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Hi all, I’m Kirsty. I’ve not long since been diagnosed with Non Hodgkin Lymphoma. It’s stage 4 and Follicular according to my biopsy and I’m told I have “bulky disease”. As you can probably guess by the time stamp, I’m having trouble sleeping. I only...
OK. I was diagnosed with low grade follicular lymphoma (incurable but manageable) in March 2020, just as we went into the first lockdown. All was OK and I plodded along as anxious as everyone else with a diagnosis was regarding Covid. Unfortunately one...
Hi All I was diagnosed with Follicular Lymphoma in August 2020, after being unwell since November 2019 and being initially misdiagnosed as having first asthma and then GERD. I've had six rounds of RCHOP and I'm now on a 2 year Rituximab maintenance...
Hello, It is coming up to 2 years since I completed by treatment for follicular lymphoma and thought that I was handling everything ok until now. I have 2 lumps on my chest again which I have had scanned, and they say it is a cyst, however I constantly...
I’ve had five cycles of my six chemo treatment (Bendamustine and Obinutuzumab) for my NHFL but have started to get terrible itching around my neck, that’s driving me mad Will be asking the clinical team for advice and help with this but just wonder...
First appointment with the haematologist, I went in feeling relaxed and unconcerned, fully expecting her to say, “watch and wait,” and armed with a relatively short list of questions so that I know where I stand. Results: She had no idea what stage...
Very short message as I've tried to join this group several times and my messages never work! I have NH follicular lymphoma, shortly to start chemo.... more later, (after I get back from work) if this one sends.... I'm 70 and not tech savvy!
Hi All I’m Kate and less than 3 weeks ago I was a hiking, open water swimming, working full time, mother of 3 and grandmother of 2, generally loving life. I started to get to unusual spasmodic pains around my digestive areas and monitored this for a few...
Hi everyone, I’m Ben and thought I’d bring myself to the group really. I was given the diagnosis of stage 4 FL 2 weeks ago, this is after 14 weeks of feeling really unwell - fatigued, weight loss, skin itches, night sweats, no appetite … so on and sod...
New to treatment I was diagnosed in Oct 2018 and started treatment last Thursday.I had a couple of minor allergic reactions to the obinutuzemab but nothing major. I felt great for a couple of days apart from one night where I couldn’t sleep and almost...
