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About to start 2 years rituximab for fnhl, anyone out there been through this regime? if so how did it go Many thanks for any info Ruby
hi, I have reduced hearing due to fluid in middle ears. Also stuffed nose. A private ENT Consultant has identified a lump at the back of my nose. He has referred me to my Team with a recommendation to take a biopsy. I am expecting it to be onfirmed...
HI. I have joined this group as it is more pertaining to myself, and I can also view the main website which is extremely useful. I was diagnosed with the above some 5 years ago - I was on the watch and wait system, as apparently, they do not want to...
I have FNHL and am on my first cycle of chemo and antibodies and then 2 lots of antibodies (1 more lot to go) . I am going day by day as I never know what tomorrow will bring but I am struggling so much at times. I seem to have pretty permanent nausea...
I have follicuar non hodgkin lynphoma and am on day 3 after my first chemo. I felt fine until today when I feel really rough and nauseous. I also have incontinence where when I stand up urine leaks down my legs. I don't seem to have muscle control of...
Hello. My name is Shanna and I have just joined as I have been diagnosed with Follicular Lymphoma
I was diagnosed with follicular lymphoma 4 weeks ago and my emotions are all over the place. I am 73 with a very positive attitude but I'm shell shocked at the moment. I have something called Sjogren's syndrome and there is a 5% chance of developing lymphoma...
Hi I’m wondering why when you have low grade FNHL some people have R-CHOP and others have radiotherapy, can someone explain why please, and why some have radiotherapy and others are on W&W, My husband starts 12 sessions of radiotherapy on the 13 June...
Hello I was recently diagnosed with Follicular Lymphoma and have been unable to work due to other underlying issues on top of Lymphoma which causes extreme fatigue.My place of work only pay s.s.p. which is not a lot and I know that this is not indefinite...
Hi, I’m getting ready for stem cell transplant in June for relapsed follicular lymphoma. I was first diagnosed in 2020 and had 6 cycles of R-CHOP. I was in complete remission but relapsed in 2022 and was on watch and wait for few months before starting...
