Newly diagnosed follicular lymphoma

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Hi all, I have recently been diagnosed with stage 3 follicular lymphoma I’m only 33 with young children  

all come as a surprise as it was a accidental finding.

reading these forums has helped massively reading others story’s.

im currently on a watch and wait and would be nice to hear others story’s going through the same thing. 

  • Hi again  (I put up a reply to one of your other post) and a warm welcome to this corner of the Community

    I am Mike and I help out around our various Lymphoma groups. 

    I don’t have Follicular Lymphoma but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell - Not Otherwise Specified NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well.

    Any questions just ask…… My story is rather complicated See my story as I had to go onto have significant treatments mainly due to me developing a second more aggressive type of T-Cell NHL in late 2013……….. but I am 9 years out from my last treatment and turn 69 in a few days and I doing great.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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