So lonely

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Hi I have FNHL stage 4 and am about to have my 3 cycle of O-Chop tomorrow.

I'm married, but my husband has been so distant and doesn't seem to care anymore.  He goes out and socialises with all sorts of people and has already given me covid and a cold.  I'm worried that after my treatment he will leave me and this is on my mind the whole time.  I have spoken to him about it and hes said that he isn't happy at home and that this was before I was told I needed chemo but wants to try and is hopeful... but does nothing.

I'm so lonely and I honestly wonder if there is any point to all of this?

  • Hi  and a warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups. 

    I don’t have Follicular Lymphoma but I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable other type of Low-grade non-Hodgkin lymphoma eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ is different I do appreciate the challenges of this journey rather well.

    I sorry to hear about the challenges with your husband, from years of supporting others on their journey your husbands approach/reaction  is not that unusual as it is often their way of dealing with this……but it makes ‘your’ journey that more challenging.

    Although you feel alone there are places like this group and a few others where you can connect with others. O-Chop is a very effective treatment and it’s aim is to put your FL to sleep and for life to get back on track.

    My last treatment was over 7 years ago and I am living a good life so although this all gets on top of us….. there is light at the end of the tunnel.

    You may want to check out the Lymphoma Action website. Lymphoma Action is the only UK Lymphoma Specific Charity who have lots of good reliable information, videos..... basically all things Lymphoma....... pre, during and post treatment.

    They run regular Support Platforms for patients..... I highly recommend these groups as there is nothing better than talking with other who have walked the journey.

    They also have a great Lymphoma Action Buddy Service where people can be linked up with someone who has walked the same treatment journey.

    They also have a Lymphoma helpline on 0808 808 5555 where you can talk with someone and get support - open every week day from 10 till 3.

    Do also check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.

    Although you feel alone you don’t need to be alone ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Thank you for your reply, I will check out the groups you have mentioned.

  • By coming on here you have made ‘that’ very important first step, now it’s all about building on this step……. I have been on my journey for over 24 years, yes there were challenges but nothing that can’t be pushed through….,,, always around to chat more ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge