• 3 replies
  • 17 subscribers

Was diagnosed yesterday and still getting my head around the news so just wanted to say hello.  

  • Hi  and a big Hello to you although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.

    I don’t have Follicular Lymphoma (FL) but I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable 'other' type of Low Grade NHL eventually reaching Stage 4a in late 2013 so although my Lymphoma ‘type’ is different I do appreciate the challenges of this journey rather well.

    FL is one of the most common type of Low-grade non-Hodgkin lymphoma....... and some Consultants will actually use the words "if you are going to get Lymphoma FL may be the best one to get"....... but I am not sure that having any cancer is 'good'.

    ....... did you know that there are 60 types and sub-types of Lymphoma...... with many different Treatment approaches.

    Lymphoma is the 5th most common type of cancer in the UK (after breast, lung, colon and prostate cancers)...... but most people don't know anything about it as it does not get the press like the others.

    So we can support you better do tell us a little about your journey so far and what you have been told about the way forward looks like.


    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi, thanks for reaching out and showing that there is always a future.  I have no story yet - only found out 2 days ago, but will add as things move forward.  Did now, I am remaining positive and caSlight smile.  Glass half full always Slight smile

  • Do use the link to read up on Follicular Lymphoma and try to understand Low-grade non-Hodgkin lymphoma.

    You also need to know as much as you can about ‘your’ presentation so the following link will help you get a note book going with all the questions you want answers from when you talk with your consultant next Questions to ask your medical team about Lymphoma

    Always around to chat.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge