Hi All -New here

  • 4 replies
  • 18 subscribers

I am 42 years old I  have diagnosed with follicular lymphoma Low grade  and my treatment has started had my first chemo I am doing good , keep myself busy in office work.doing daily exercise,feeling better.

want some more motivation from community to back on the normal life instead more thinking about disease 

My treatment O-CVP is going on

  • Hi  and a very warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.

    I was diagnosed way back in 1999 with a rare, incurable but treatable different type of Low Grade Non Hodgkin’s Lymphoma Stage 4a so although my Lymphoma ‘type’ is different I know this journey rather well.

    Apologies but this is part of a copy and paste from another post  ;)

    Follicular Lymphoma is the most come type of Low Grade NHL

    This brings the advantage of lots of research and lots of treatment options. Like my type of Low Grade NHL - Follicular Lymphoma is actually incurable but very treatable with people living long and happy life.

    Think it as a chronic health condition like say Diabetes but unlike diabetes where people have to take medication all their lives and should they miss some medication there are serious complications…….. Low Grade is just not like this with people going meany years between having treatments.

    O-CVP is one of a number of treatments that are used for FL and it’s sounds as though you are doing good. Keeping some regular activity can help a lot and doing things that takes your mind away from your cancer also helps.

    Do also check out the Lymphoma Action website where you will find lots of Lymphoma Specific Information, great videos and also details about their regular regional online Lymphoma Online Support Groups and indeed a great Lymphoma Buddy Service.

    The Lymphoma Action helpline on 0808 808 5555 where Sharon or Nic will be on hand to answer your calls to give you some emotional support - open every week day from 10 til 3.

    This group is always around to chat and help out as best as we can.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi Rahou. So glad you found this group! Some wonderful people and so much love and encouragement here! I, too, was diagnosed with grade 1 follicular lymphoma three years ago. I figured that was easy breezy, a cakewalker, nothing to worry about. No treatment recommended and life went on as usual. The problem begins when it starts to affect other areas. Mine moved into my bones….specifically, my left hip, groin, femur, and knee. The way they found it was that my femur fractured for no reason. That happened on Dec 13, 2021, but we all thought it was severe sciatica…even my spine doctor! I lived with a broken leg for over a month before it was properly diagnosed on Jan 17, 2022 in the hospital. Those were some dark, dark days. I am not taking the same treatment as you, but have come a long way (in the right direction!) since proper diagnosis in mid-January 2022.

    About your ‘disease’. I try to use words that dont dredge up sickness in my brain. For lymphoma, I usually just say ‘my condition’. And for that C word - chemo - I say infusion or treatment. And that other C word, cancer, that one never rolls off my tongue. I just dont need that word in my LIFE.

    Usually, they diagnose a low grade lymphoma from an MRI or CT scan that you’ve had for a completely different reason. Otherwise, most people would just be blissfully unaware. So, to wrap up… your condition is very treatable and I’m so glad that you’re getting treatment! Praying that you haven’t had a secondary condition present itself and that you got ahead of that! As Mike, Thehighlander, would say… this is merely a health interruption. He is such a ray of light and positivity and a wealth of information for us all

  • Thank you Mike for your support 

  • Thank you Se ven ,

    Till now I am doing good with my health no issues with side effects, hope this will go as usual