Hi. I have been diagnosed since 2020. I don’t know anybody with this.

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Just wanted to be in touch with people who understand the ups and downs emotionally. 

  • Hi  and welcome to the Community but sorry you have been diagnosed with FL.

    FL is about the 4th most diagnosed type of Non Hodgkin’s Lymphoma. It’s very treatable but at the moment it’s incurable.....but think living with a longer term chronic illness.

    I was diagnosed way back in 1999 with another type of rare incurable NHL, I have had lost of treatment over the years but I am living a great life.

    Do check out Lymphoma Action, a small UK Lymphoma Specific Charity who have lots of information and videos about Lymphoma. They run regular regional online Lymphoma Zoom support groups and indeed a great Lymphoma Buddy Service.

    Always around to talk more.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hi

    i was diagnosed yesterday, just waiting to hear on treatment etc.

    A rollercoaster of emotions 

    How are you feeling?