Hello everyone

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I am 50 years old and have recently been diagnosed with low grade folicular lymphoma in my stomach.    It was found when I went to A&E with a suspected appendicitis.  I am currently on active monitoring and feel fit and healthy.   I do some form of exercise every day, be it a walk, run or cycle.  I work in a high school and intend to try and carry on as normal and pray I have many years ahead of me before I require treatment.   

  • Hi and welcome to the club no one wants to join, sounds like you have your head around your diagnosis which is good for you, any questions just ask and someone is always around to respond. 

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
  • Thank you.  I am going back to work on Monday as I need normality and routine.  I work in a high school but have my own office which I can hide away in.  I have a busy job and life style which I need to maintain whilst I can for my mental health.  I know at some point I will have no choice but to slow down and wind my neck in, but it's not here yet.     Its hard when I wake in the night because my head takes over and getting back to sleep is an issue.    All that said I thank god because it could be worse and I pray he keeps me well for many years because my 82 Yr old mum and my 2 children need me around xx zoe 

  • Zoe, A number of people with FNHL look at it as a chronic disease and when it flares up its treated, if you can get to this point then you may find the thoughts through the night quieten down, hopefully. Until treatment is needed continue as you are its the best and only way.

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
  • When I was first diagnosed I would wake in the night and worry, would go to the kitchen and have hot chocolate and try doing a crossword. Now I tend not to wake in the night for long periods, but I go to sleep each night listening to an audiobook with earbuds so that I don't disturb my husband. If I was awake for a long time in the night I'd try the audiobook again. Might be worth a try, Zoe.

  • Thanks John that's a great way to approach it 

  • That's not a bad idea Joy, I will try that, thank you