Hello. I hope no one minds me posting on this forum as I do not have lymphoma however a very good friend of mine has recently been diagnosed with stage 3 NH follicular lymphoma. He is due to start chemotherapy shortly and id like some advice on how...
Hi everyone, I’ve have a positive update. My haematologist has confirmed that my follicular lymphoma is localised at the top of my leg so the plan is to have radiotherapy with the hope of a cure I also had a fertility preservation appointment this...
Hey guys, I'm 42 from Melbourne, Australia normally fit and well and back in January this year I got a pretty sudden onset excruciating Abdominal pain that landed me in the emergency department for the night. They treated it with some heavy pain meds...
Dear all, A few months after my first course of chemo- and immunotherapy, my follicular lymphoma returned. I have now started a second, more intensive round of treatment (obinu and benda). The first course was physically harder than I had expected,...
Hi Everyone, I was recently diagnosed follicular lymphoma and was truly grateful to start R-benda treatment I am doing okay. I am early on in my cancer management but I wanted to know if I am not alone as to the feeling of that although I feel very...
Hi, I wonder if anyone on the forum has had experience with Rituximab and how long they were able to stay in remission with it please ? I am referring to just the induction Rituximab and not the ongoing maintenance but as much info as possible would...
I’ve just been told that I will be having RCHOP , and that I will loose my hair . I live in Essex , and I’ve heard there’s a good wig shop in Southend . Wondered if anyone has experience buying a wig , is there a discount code ??? thanks mandy xx
Hi all I'm nee to the group was recently diagnosed with low grade non hodgkins lymphoma follicular last Wednesday I had a pet scan my follow up appointment was 18th March however this morning I had a call bringing my appointment foward to tomorrow I'm...
Hi I’ve completed 6 months of Rituximab and Bendamustine for Follicular Non Hodgkin Lymphoma. The scan at the end of the treatment shows there are still a couple of nodes near my stomach but the Consultant says she’s not worried about them? They are having...
