72 hours after R-CHOP 1st cycle

  • 5 replies
  • 11 subscribers
  • 1195 views

almost 72 hours after R-chop nausea weakness aches what can i try? after a visit back at 48 hrs for iv fluids and ondansetron i am now keeping water down so I'm guessing the rest is to be expected?

feeling emotional and trying to not to be expecting from my 16 year old who really has never seen her supermum  like this before, any tips?

  • Hi  and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike  and I help out around our blood cancer groups. 

    I was diagnosed way back in 1999 with a rare incurable but treatable type of low grade skin Non Hodgkin’s Lymphoma Stage 4a and although my blood cancer ‘type’ is different I have experienced most types of treatments used but not necessarily the exact same drug mix.

    Your body is coming to terms with its first chemo ‘hit’ and will take time to acclimatise to what it’s going to be going through.

    Nausea initially can be a challenge but do remember not to suffer in silence when it comes to nausea there are lots of tools available - but your team needs to know how you are getting on.

    Good hydration is very important so you do need to drinking lots of water as this will flush out all the toxins released by the chemo, will help the nausea and protects your kidneys.

    Over my many years of treatments as a family we took the open and honest approach. You 16 year old understands far more that you would appreciate so some honestly when you are not great helps develop a good foundation for going through the rest of your treatments.

    Even super mum is going to have off day.

    Most folks find each cycle to be different so it’s all about taking each day and week at a time, enjoy the good days….. yes there will be many good days and just put up with the bad day - remember this season is all temporary.

    Happy to talk more at any time ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi if the nausea is bad do discuss it with your team before the next round, I used have a mid cycle check at around day 10 with the consultant so if your the same raise it them and when I was sick once after round 2 they immediately gave me aprepitant for the following rounds and I was never sick again. You take one tablet 1 hour before treatment starts then another tablet on day two and day 3, it blocks the receptor in the brain that triggers you being sick. Its clever stuff but works for most people. 

    Hope you get sorted and things settle over the next day or so

    John 

    we all know this is a roller coaster ride, where we ride blind, never knowing where the highs and lows are
  • Thank you for your message I think I freaked out a bit there feeling so sick but my team were right on it and cyclizine has helped more than ondanestron thankfully.  I don't want to be anticipating the same next round so will be more proactive and take meds early. I will learn as i go I expect but your support is amazing thank you x

  • I will try and drink more too thanks so much for your advice and support ... I'm getting used to all this and I'm sure I'll learn a lot more as things go. I'm not super woman but I can do this. 

  • I had a lot of nausea and aches and pains with RCHOP. I guess the aches are the bits of lymphoma melting away although I was never told that that would happen. As for the nausea, once I got the medication changed to something that worked a bit, I found food that I could eat and lived off that. For me, it was cheesy mashed potato for savoury, and fruit jelly for something sweet. I lived off that for the duration. Good luck in finding what works for you.