Rituximab

FormerMember over 3 years ago

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I was diagnosed with Stage 4 lymphoma in 2017 I had 6 sessions of rchop chem and 2 years of Rituximab maintenance chemo. I'm currently on watch and wait and my cancer is in remission.

Has anyone had problems with their chest and breathlessness since having Rituximab? I've had chest x-ray and ct scan but nothing showed up, but my breathing is not good anyone else had these problems?

po18guy over 3 years ago

Sorry to hear this. Which sub-type of lymphoma? I had a similar difficulty, but it was when I had active T-Cell Lymphoma (AITL). Since you are in remission, that bit is out. When did this begin, and how does that match up with your last Rituxan dose? Might be a clue in there. Consider also that the stress of shielding and the constant barrage of Covid horror tales can lead to an increase in overall anxiety. This can certainly cause chest tightness and "changes" in breathing. Have you rung up your consultant?

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One cancer (PTCL-NOS) 3 times. Two other cancers: Angioimmunoblastic T-Cell Lymphoma 2 times, and 20q deletion MyeloDysplastic Syndrome) were chemo refractory. All three cancers simultaneously in 2015. Stage IV twice + MDS @ 23% of marrow. 12/22 diagnosed with Squamous Cell Carcinoma. Thus far, 14+ years, 20 drugs, 4 clinical trials, Total Body Irradiation, 1,000+ years of background radiation from scans. 7th remission so far. Haploidentical stem cell transplant, acute > chronic Graft-versus-Host-disease. Currently receiving my 7th GvHD regimen.

FormerMember over 3 years ago in reply to po18guy

It is follicular lymphoma it was in my chest and bones. It started while I started having my Rituximab which was 2018.

po18guy over 3 years ago in reply to FormerMember

Ah. Rituximab is known for allergic reactions. Did they give a small dose of Benadryl just before the infusion began? "I" would try some over-the-counter allergy medicine, but that is just me. Still, I think it proper to ring up the centre and get an informed opinion.

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Rituximab