Early relapse Follicular 3b

Sorry to hear this new  but as you have been told there are other treatments available and you need to get your team to set out what they think is the best route for you to take.

I have an different type of incurable NHL (see my profile) and two Stem Cell Transplants (June 2014 and Oct 2015) eventually got me in to remission on the 19 Sep 2016.....the first time in over 17 years so it’s my 4th remission birthday on Saturday and I am living a great life and my granddaughters see this as a good resounding to have cake and put on party dresses

You need to see that although not what you would have liked, there is a longer journey to follow but the goal had not changed as this is all still do-able. 

We have had a number of folks with FL post in our dedicated Stem cell transplant group so with having a search in the group.

Do come back and tell us how things are progressing ((hugs))

I'm in Australia, too.

My first suggestion is that if there's any uncertainty at all regarding the specific type of lymphoma, the slides be sent to a hospital with a large blood cancers department for a second opinion.

I was diagnosed last December and have been in remission since June.  My haematologist told me that if I had an early relapse we'd go straight to trials, so not all of them require two conventional treatments to have failed and they're definitely no longer the last hope of the desperate.

I'm being treated at the ONJ centre in Melbourne, so I'm pretty confident that they're looking at everything. I was initially diagnosed with both DLBCL and Follicular 3b. What's left they believe is indolent, so the FL. 

I suspect they'll look at a trial first and then a SCT if that doesn't work, but I'm not sure. I did have contact with someone today who's also at ONJ and has had success on a trial for 3b using Ublituximab and Umbralisib

Thanks. I'm just so frustrated. I was expecting this to be done and dusted by March. I was diagnosed in October. I had no symptoms at all before diagnosis. I was fit, walking 20,000 steps a day, doing 4 pilates classes a week

Over my many years we just had to understand that nothing was certain, to expect the unexpected but most importantly, there is always a next plan