Starting Treatment 27th December 2018

Congratulations Carl!  Hope that scan is clear and you're safely into remission.

Cecren

Back from a great holiday with the clan in North Wales stayed in a converted chapel in a small village called Llandrillo on the edge of Snowdonia 

Straight back to hospital for my 2nd maintenance treatment, all went well no side effects and all done in less than an hour, speaking to my consultant he is very pleased with the way its going, only problem my toes and losing my toenails he thinks I may have an infection (no doubt the Lake Bala water ;-)  ) told me he would give me a course of antibiotics if it continued

I feel so very lucky with the way my treatments going and still maintain getting plenty of exercise and drinking plenty has really helped me along the journey

Just had a bit of bad news my brother has just been diagnosed with prostate cancer hopefully caught early enough for a good recovery 

Hope everyone is getting along well on their journeys and thanks for the great support on here

Good to hear about your time away and let’s look for your infection to clear up quickly.

Sorry to hear about your brother. As you have said, you found the Community a great support. We do have a great bunch of folks over in the Prostate cancer forum where he would get the same type of support and information that will help his cancer rollercoaster.

Hiya!  Sorry to hear about your brother's diagnosis and hope the prostate group is as supportive and cheering as this is.  It made a lot of difference for me too.

Fitness and looking after yourself during treatment does help when you have to rebound and get on with life.  It's always rather good to get some immunity to infection back too!  Does the maintenance treatment affect this significantly?

I hope you can't blame the lake water in Snowdonia for doing nasty things to your poor toes - we grew up drinking that stuff as kids!

Cecren

Hi,

Sorry to hear about your brothers diagnosis. Fingers crossed they have caught it soon enough for him to make a full recovery.

All is good here - dentist next Monday so might not be so happy then - lol.

Back at school with a new bunch of ‘monsters’ and potential germs ...........

Though they do make me smile. One day last week one of them had covered his arms in green felt tip pen. I asked him to come and join me on the carpet.........

Me - why do you think I have asked you to come to me? 

Student - because I love tigers ..........

Yes, that bore absolutely no relevance to anything going on in the classroom or why he was now covered in felt tip pen - lol ........

Onwards and upwards to you all.

Nicky 

Hope your brother gets sorted  fingers crossed for him  waiting game for myself  so taken  myself and my wife to corfu  on the 20th for  a week  take  my mind off scan and  results  on 8th October  bulous  bunch  on here  helped  me so much  thanks again everyone onwards and upwards

Because I love tigers????  One of the better responses when you're in trouble.  Must remember that for sticky moments...

Good luck with the dentists, Nicky.

Cecren.

Well the dentists didn’t go terribly well as they need to remove another 2 teeth. Not terribly unexpected as they originally said 7 and this will only make 6 ..........!!! The chemo has certainly had some ‘fun’ in my jaw bone. 

I keep telling myself that it could be SO much worse and if it means getting the magic remission word then I don’t have a choice.

School continues to be busy and is keeping me out of mischief. I still get very tired very quickly but that could just be old age now and working with 5 year olds - lol ......

This weeks story.

Bell rang and all children except 1 line up.

Principal heard me questioning him so had words too.

P - Why didn’t you line up?

Child - I didn’t hear the bell.

Me - Who rang the bell.

Child - I did ..............

Have a great weekend.

Nicky 

Hi Nicky, whilst fatigue is an ongoing issue for many, me included, its worth getting your vitamin D levels checked as low levels are associated with lymphoma and I found the supplement has improved things massively. 

John 

Hi Nicky!

Sorry to hear the latest dental update.   You're had to put up with a fair bit to get to the magic remission.  It's about the rest of our lives and we want it to last. I hope this now ends the dental problems you've had!

Sure, follicular lymphoma is currently expected to recur/relapse with many of us treated patients, but given that we already know the extent of treatment options, we can be optimistic.  I know it's a fast developing field of research too and new treatments may offer a future range of new choices.  I also concur with John about taking a bit of vitamin D - the evidence doesn't seem to say why it works, but certainly supports the argument that we do better on it.  My GP had me on it anyway, having misdiagnosed my bone lesion as osteoporosis several years ago.

Despite my age, I feel my energy isn't bad.  But your job is a stressful one because kids that age never let up!  But I love the stories...  do please share more!!

Cecren