Had my fourth R-CHOP last Friday week and I've not felt so low

Hi  and welcome to this corner of the community.

I think we all go through the low points over treatment. We are all human and if you did not have a down time you would be super human.

I think I have got used to it all as I have been on my journey for over 22 years now (different NHL see my profile)….. what you need to get is that this part of the journey is temporary….. it’s not forever and a few months down the line you will be look back with fuzzy memories.

Thank you Mike, I guess you're right. Just have to sleep it off I guess. Been trying to keep active, but difficult in these times for all of us. When in hospital everyone kept in touch several times a day and kept me occupied, now home and everyone seems to have disappeared. Guess they all have their own lives to live. Take care. Love the Nelson Mandela quote.

Hi again, you will see that for my main chemo treatment I was in hospital for 5 days/nights for each of the 6 cycles and got on well with the lads in the ward….. but once out, everyone tends to get on with life.

Keeping some activity going is so important, I was doing a mile of two walking with my chemo pumps round the corridors and this did help overcome some of the fatigue.

But you are not alone as the community is always around, 

Hi Andyoddjob

If it is of any consolation I found the 4th one a challenge too.  You are over half way there, you have done so well thus far.  A few down days and a few down thought I think are normal - they were for me too.  Hang on in there, speak to your team they will be able to help.  Also try the McMillan nurses who may help you to realign your thought.

I wish you well my friend, sending you some positive vibes!

Mrs D x

Can't believe what you've been through and still positiveI  Great to hear from you. The community sounds brilliant. As one of my doc's said you just chill out and let us get your treatment done and make you well. I'll keep trying, thank you for getting in touch so quickly. I wasn't allowed to leave my single room in hospital for the four weeks I was there because of COVID-19 except when they took me for scans etc. But I had a  24hr view of the Queen Elizabeth Hospital, Birmingham Accident and Emergency ambulances arriving and departing! Now at home with my Wife who seems to have the beginning of some sort of dementia and won't see a doc which worries me too. Take care friend.

Sorry to hear about your wife, easy for me to say but she needs to get checked out, as a family we have had to deal with this over many years.

There is only one way to go through the journey and that is to be positive, the other options just make living through treatment that much harder. Your consultant is spot on, let them deal with medical stuff and you deal with the battle between the ears.

Thank you Mrs D. It's good to hear from people in the same situation. I'm feeling the vibes. I'll try my specialist nurse tomorrow. Feeling better just chatting on here  Thanks again and you take care my friend. Hope you are in the clear now. Cheers x

All clear to date chemo completed Feb - staying positive and ignoring negativity!  Hoping the same for you keep your chin up!  Hope your wife gets better too - again ask your team if they can help - magic can happen.

Brilliant news thanks for sharing and support. I'll contact my team today. Chin firmly up. Feeling much better today. No more negativity from now on. Every day in every way I'm getting better and better! Thanks again.

Hi

Had my 4th one a week ago and it has also hit me harder then the previous 3. Much harder in fact! I seem to have gone from being mostly active to hitting a slump in terms of fatigue and mental state. My cycles are only 2 weeks apart so hoping I have a good few days before being back to it again. Because I'm getting to the stage where I'm more drained from it all it's almost like I'm re-experiencing the symptoms I had when first diagnosed. Probably all in my head as this whole experience is a mental roller-coaster ride to say the least. Not an easy journey but as long as we keep putting one foot in front of the other we will get there. Sending hugs and prayers