how can i help my son

Hi Choo,

Great to hear your son is having the treatment and has had his second round. 

My dad has just had his second round and will also be having the 'Intrathecal' chemotherapy as a precaution too. I think if the cancer is near to the central nervous system, i.e. the spine then they do this to be safe.

Hope this helps.

Thanks,

Hilary

Yes this is normal for this presentation ((hugs))

This is a common part of the treatment & is, as you said, a precautionary measure. I had 4 doses of  intrathecal methotrexate. Dr would get me in a seated position on the bed and I would lean over a small table or pillow. They numb the lumbar area with local anaesthetic & then use a needle to remove a small amount of spinal fluid & then replace it with the methotrexate....it sounds much worse than it actually is! I didn't find it painful at all, and it's a quick procedure. Afterwards they advise you to lie down  for a few hours to prevent getting a headache. I was also advised to drink coke afterwards too, but I can't remember why that was! Hope you & your son are holding up ok x

Hi, maybe I can pitch in here. I just had my first methotrexate session over the last few days in hospital following my 3rd cycle of chemo and fortunately it all went without hitch. 2nd session also planned between my 5th and 6th cycles just like your son. 
Ask me anything you think I may be able to help with ?

Hi  and welcome to this corner of the Community....... your forum name suggests that you are just South of my old home town the Broch.

Good to have you join the Community.

You should join the group as this will mean that you will receive posts from other folks but you do need to indicate if you want email notifications sent to you.

When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.

All the best.

Edit - just seen ou have joined the group as well as the NHL Group

hi everyone been a while ,

thank you so much for all the reply I received 

hope everyone is as well as can be 

happy to say my son thankfully just completed last and  6th dose on 9/2/20 just be the coronavirus put everything on hold 

thankful all seems well plus had pet scan and all was clear  .

Has anyone completed Rchop ? he was at stage 4 on neck mass was 21cm very large but all gone after 2nd dose  and pet scan now shows clear but I still worry cause I know he is still worrying about it as I have after I finished any lump you think its back .

I know he needs to let this feeling go not easy to do ,said can feel lump which I think normal size gland ?

not seeing doctor till  end of may cause of the coronavirus .

So good to hear this news considering the journey you all had to get to this point.

I think we all understand the ‘what if’s’ once treatment is complete and yes, he will feel things and his mind well tell him lies - but he now needs to trust his body and heal.

It may be good for him (and you) to look through this great paper as it helps identify the milestones in the post treatment journey.

Now is the time for him to safe more than ever.

((hugs)) from a distance.

Thats great news, pleased for you both, do get him to read the paper Mike has given a link to, it really does explain all the emotions you will both be feeling.

As for the future, tell him about our stories and I am over 10 years post treatment and life is good, it can be for him too

John  

Hi Choo,

Just wanted to say I'm so pleased your son had treatment and a negative PET scan - such wonderful and happy news.

Hil

hi 

thank you so much for your reply 

giving a huge distance hug 

hope all is as well as can be for you 

xox