Hi . I came on this site because although I've had CLL for 4 years I'm still on watch and wait . I get tired but only feel really ill if I overdo it or get stressed . But my main problem is that I get like tingling and restless legs feeling at night mostly...
Hi everyone, I’ve been living with CLL for some years and it was only in 2023 when I had been diagnosed with mycoplasma pneumonia that I was informed I also had CLL. I have ongoing joint pain, severe swelling of my glands in my throat etc. but was informed...
Have been informed that I have awaiting appt in December to talk to haematologist. Very few symptoms except tiredness. Picked and diagnosed as has had elevated WBC for four years Not too sure what to do. Regularly do exercise
Hi all, Terence here [rimshot] - 58 years old this coming Saturday, diagnosed with CLL last year, watch 'n' wait and all that. All a bit numbing with the diagnosis, some evenings are a bit sleepless with the anxiety etc. It's not too bad during the...
Hello everyone I was diagnosed with CLL start of last year and have been on "watch and wait". I had follow up this week and looks like may start treatment end of year. The Consultant has been great and explained things and listed which drugs may use...
Hi My husband has just been diagnosed with CLL. He has an enlarged lymph nodes in his neck and abdomen. The haematologist said they would have to start treatment as the lymph node in his neck is quite bulky. He said my husband, who is 82, would be able...
Hi, my brother has just been diagnosed with CLL. I’m here to find out more so I can support him. He isn’t coping well at all and has MH issues already. He’s has scans etc which confirmed the diagnosis but the appt for consultation to discuss treatment...
Hello. I’m new to this group. I finally navigated around this site and found the correct group for leukaemia. I was diagnosed last July. Watch and wait game. However it has become active and I have enlarged lymph nodes in both sides of my neck. Also a...
Hi to all, I was diagnosed with CLL in 2014. On watch and wait up to 6 yrs ago. Developed mouth cancer and CLL also kicked off. so all been a bit manic over the last few years. Re CLL I’ve had chemotherapy then went on to have 15months of immunotherapy...
Hi everyone...I cant remember if I was in this group before. Apologies if I'm still in it. My name is Linda, I was diagnosed with CLL in February 2009 at age 49. Was on W and W until October 2024...had treatment with obinutuzumab and chlorambucil which...
