New here

Hi  I am Mike Thehighlander and welcome to the Community.

I have a rare NHL but have also been shielding for the past year but with my wife.

Its been a challenging time for blood cancer patients but we are seeing light now.

There are a few folks dropin past the group so let’s see who is looking in, 

Do also check out Lymphoma Action, a small UK Lymphoma Specific Charity who have lots of information, videos and run regular regional online Lymphoma Zoom support groups (including Scotland) and indeed a great Lymphoma Buddy Service.

Hi Paul 

I'm also new to this group. I was diagnosed with SLL just before we went into the first lockdown. I was on watch & wait but my weight is still dropping and I’m exhausted all the time so the hospital have finally decided to treat me. 
weird journey and to be honest I’ve felt totally alone- if I have any questions I have to ‘email the oncology secretary’ and wait for a reply ........so I don’t bother. My family aren’t coping with it well (as I’m the go to person for everyone), so I play it down. And work wise, the buck stops with me as I’m self employed but responsible for a very large team and don’t want to share. 
At my face to face at the hospital last week instead of being told my treatment plan(which is what I was told to expect), I was met by a new consultant who said I should never have been in the lymphoma clinic as I actually have CLL ?! But apparently I’m not to worry as treatment is the same !! Again, I felt like screaming!! So had 1 final test and I’m back next week to give consent to treatment. I’m freaking out a bit as the literature is a bit scary but I just feel so ill informed. I can deal with anything if I know but not having a real person to talk to is so hard. 

Take care and stay safe xx