Hi Thank you for the welcome. Not sure how I want to use the group at the moment. Diagnosed with CLL five years ago and just discussing options with consultant at the moment. Oral or Infusions!! More discussions next week after MDT meeting.
Hi just dropping in past to say welcome and let’s look for some of the group members to drop in past.
I was diagnosed with a rare NHL back in 1999 and have had an eventful treatment journey but still here and doing great.
As you may know CLL and SLL are different forms of the same disease and are often classified as types of B-cell non-Hodgkin lymphoma but are treated in the same way so do check out Lymphoma Action, a small UK Lymphoma Specific Charity who have lots of information, videos and run regular regional online Lymphoma Zoom support groups and indeed a great Lymphoma Buddy Service.
All the best.
lymphoma-action.org.uk/.../chronic-lymphocytic-leukaemia-cll-and-small-lymphocytic-lymphoma-sll
Thanks for the info Highlander. Just looking at different sites to see what other people are doing and how they are coping.
Best wishes
Andybyname
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