Hi Group After describing the start of my wifes journey as she is admitted to Worthing hospital last Monday to start he first cycle (3 x 90minute ) Chemo infusion treatment. As if today she is two in and is showing no side affects he blood levels...
Hello My name is Merse1806 and my wife has been diagnosed with CML and is due to start Chemotherapy hopefully this week. We are both very scared due to not knowing. My wife is very well physically still very active bubbly and asks me at least 3 times...
Hello 33 years old diagnosed with CML three years ago. Iv tried 4 different lots of chemo tablets daily all which don’t ageee with me and make me very sick & poorly. Is there anyone else who has side effects to treatment? I now have a hospice nurse and...
Hello everyone. I’m posting on behalf of my daughter. 25 now but 16 yrs old at diagnosis. Paris had an ok response to imatinib but her team were keen to switch her to Nilotinib after a year. She became undetectable after 12 months and remained on Nilotinib...
Hi I never expected that I would be on a site like this. My husband was unexpectedly diagnosed last Sunday. He had a routine blood test when he went to hospital with a different issue and then they came and said Leukaemia. We are both still trying to...
Receiving a diagnosis of chronic myeloid leukemia on June 26th was quite a shock. Initially, I attributed my symptoms to early menopause, given my age of 36. I've started nilotinib treatment and have been on it for about two months. There was a brief...
Hi all, I’m new to the forum so would like start by saying hi to everyone. I was diagnosed with CML in June 2024, I was prescribed imanitib 400mg. All my levels were going down brilliantly until Xmas, when my leukaemia levels went up to 3.1 from 0.53...
Hello everyone, I just diagnosed with CML last week, and currently, I am consuming hydroxycarbamide. My doctor said that I would start consuming imatinib, but I don't know when it will be started. Based on your experiences, how long did you consume hydroxycarbamide...
I was diagnosed about 3 weeks ago. It was a total shock as I had no discernible symptoms. I had a blood test at 1:30PM on a Saturday, expecting results in several days. At 9:30PM we had a doctor knocking on the door telling me to get to A&E ASAP. My white...
Hi all. Very sad to be here and also grateful for the support. I hope you are all progressing well with your personal journeys of recovery. I was diagnosed with cml a month ago and start imatanib today. I know it will compromise my immune system but I...
