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Hi i have been recently diagnosed with CML at 34 no more than 5 months ago and I have been very down every since and have awful fatigue due to the TKI's constantly worrying something worse is going to happen too. I have 2 kids that are still young and...
Hi everyone, I just joined the forum thought of saying hello to everyone. I am a CML patient since Feb 2025. I have joined in to be able to talk to and share my thoughts and discuss my trepidation. I am sure everyone has faced some anxiety due to the...
Hello. I'm new here. I was diagnosed with CML in April. I'm a postman & will be working outdoors when i return to work soon. Just wondering if anyone on here works in the sun with photosensitivity? I'll be wearing a long sleeved shirt, thousers, a hat...
Hello everyone, I was diagnosed with CML last week and am pretty scared at the moment as I haven't started treatment yet and am exhausted all the time. Will Imitanib make me feel better or worse? Thanks Di
Hi I had a routine blood test and was called to say that there was a problem with my blood test result. After lots more blood tests and a bone marrow biopsy I was told I have CML! what a rollercoaster of emotions! I now take Imatinib which has it...
Stopped my meds. They affect my heart disease and basically I made a decision to not take med. I am starting to feel leg bone/ knee chronic pain and wondering if anyone else shares my experience. I know fully well what will eventually happen and am taking...
I was diagnosed with CML last year. I might have seen a nurse in my first ever appointment, but I haven't seen one, or one hasn't been assigned to to me (to my knowledge). I didn't even know that I should have had a designated nurse. My oncologist isn...
Hello, I just wondered what other people's experiences were with getting a wig using a NHS voucher. The wig companies that my hospital trust deal with are Aderans (London branch) and Browns (more hair now). Has anyone had any experiences with these...
I have just been diagnosed with chronic myeloid luekeamia and am feeling very confused. I keep thinking someone will phone to tell me this has all been terrible mistake. I feel lime my body has betrayed me. I am struggling to get my head round this diagnosis...
Afternoon all, I have been taking imatinib for 41 days and today is the worst day I have felt. Totally drained and mentally fatigued. Is this the drug or the leukaemia or both? Has anyone else experienced this sort of effect from it? I have...
