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Hello. I'm new here. I was diagnosed with CML in April. I'm a postman & will be working outdoors when i return to work soon. Just wondering if anyone on here works in the sun with photosensitivity? I'll be wearing a long sleeved shirt, thousers, a hat...
Hi i have been recently diagnosed with CML at 34 no more than 5 months ago and I have been very down every since and have awful fatigue due to the TKI's constantly worrying something worse is going to happen too. I have 2 kids that are still young and...
Hello everyone, I was diagnosed with CML last week and am pretty scared at the moment as I haven't started treatment yet and am exhausted all the time. Will Imitanib make me feel better or worse? Thanks Di
Hi I had a routine blood test and was called to say that there was a problem with my blood test result. After lots more blood tests and a bone marrow biopsy I was told I have CML! what a rollercoaster of emotions! I now take Imatinib which has it...
Stopped my meds. They affect my heart disease and basically I made a decision to not take med. I am starting to feel leg bone/ knee chronic pain and wondering if anyone else shares my experience. I know fully well what will eventually happen and am taking...
I was diagnosed with CML last year. I might have seen a nurse in my first ever appointment, but I haven't seen one, or one hasn't been assigned to to me (to my knowledge). I didn't even know that I should have had a designated nurse. My oncologist isn...
Hello, I just wondered what other people's experiences were with getting a wig using a NHS voucher. The wig companies that my hospital trust deal with are Aderans (London branch) and Browns (more hair now). Has anyone had any experiences with these...
I have just been diagnosed with chronic myeloid luekeamia and am feeling very confused. I keep thinking someone will phone to tell me this has all been terrible mistake. I feel lime my body has betrayed me. I am struggling to get my head round this diagnosis...
Afternoon all, I have been taking imatinib for 41 days and today is the worst day I have felt. Totally drained and mentally fatigued. Is this the drug or the leukaemia or both? Has anyone else experienced this sort of effect from it? I have...
Hi everyone, I don't post very often and I know people on this site are having a hard time and my heart goes out to each and every one of them. My question seems trivial and I'm almost embarrassed to ask but I've been taking Imatinib for about 14 months...
