Hey there. I've been at home with my little one for 13 weeks now and I'm struggling, she's been laying in bed since we came home as she had 10 days of seizures. It's been the worst 3 years for us all. Evie was brain damaged at birth, the. Diagnosed with eye cancer and has been treated her whole life for cancer, as well as battling the crippling effects of her brain injury, leading to severe brain damage. All that aside she is amazing, full of smiles sounds and personality until she had a massive seizure 14 wks ago. It's just so so tough, she has leptomeningeal carcinomatosis and therefore is terminal. It's just so so hard watching her slowly deteriorate. I'm really struggling to see her now as the cancer In her eye is now pushing her left eye out. She's so skinny, we massage her everyday so gently, she lays on a sheepskin and we have avoided bed sores, it's just she's not rousing at all now, she's mostly calm, I don't really know what kind of support I'm looking for really, just really so so sad and confused and desperate for her suffering to end but terrified of her being gone...... Thank you for reading xxx
