Morning everyone ,
im new here to this group but so very glad I’ve found you all ! My journey has been a smear in Jan followed by a lletz end of Jan which showed no clear margins , i was called in for an appointment wch was then told its cervical cancer stage 1A adenocaricinoma (can never spell the damn word) anyways went to MDT meeting and called in to say they aren’t happy with margins think it’s a tumour in nex k of womb I’m allowed a hysterectomy ( have 8 children so happy with hysterectomy 
) now I need to go for an MRI which for some reason is scaring me more than the cancer diagnosis think I’m generally scared they are going to find something more sisnister I don’t know why because to be fair I have no symptoms at all . I have had a recent ultrasound on my kidney which has come back with a cyst on kidney and I’m scared it’s going to be cancer related . My partner is fantastic and has been super understanding through this little journey but guess I just wanted to talk to people who are and I’ve been going through the same journey , I don’t know if I’m scared or nervous or what generally feel like my head is cloudy and I’m trying to clear it but can’t hate waiting so not helping . Don’t really know why I’m writing this to be honest suppose I’m looking for anyone who has had the same staging and treatment and they’ve been ok or even had same staging in the beginning and it’s changed throughout the journey ? I’m trying to get ahead of my own head if you get me sorry to waffle on and on .
Hi Motty2510 and welcome to our group.
I have been through this cancer twice but I hope you don’t mind me replying as I’ve not had the same stage or treatment. My cancer was too advanced for a hysterectomy at diagnosis so I went through chemoradiation and then surgery at a later date for recurrence. I did have adenocarcinoma though.
It’s a horrible shock to be told you have cancer, but the main thing that is positive is that it has been caught very early and surgery should be sufficient for you. I think we can always imagine the mri showing up something untoward, but that’s our minds having a bit of panic.
Very early cervical cancer is very likely to be contained in the cervix and highly unlikely to have spread. It is even difficult to see on an mri scan. Hopefully the mri will just confirm what is already known, and just make sure that surgery can go ahead. Try not to worry about it-the scan will more than likely just be a formality.
In case you haven’t had an mri of your pelvis before, it can be quite noisy, so be prepared for that! Personally I prefer to wear an eye mask as I can get anxious having scans. I try to concentrate on visualising being on the beach or similar, and the radio is helpful played through the headphones.
Feel free to ask anything you need to in the group-we have lots of experiences of surgery and hopefully you will gain some tips on recovery etc. Hopefully you won’t have long to wait for your operation and you’ll be able to put this all behind you.
Sarah xx
Hi Motty2510
Absolutely you have cause for hope! But please don’t feel you need to be the strong one. You are entitled to feel shock at your diagnosis, and inevitable fear about what will happen going forward. It takes time to come to terms with everything and process things.
Can I give you some real hope? I was diagnosed with stage 2b in September 2018, I had a recurrence in April 2019, and I’m still here and well. I’ve done incredibly well, and there’s every reason to hope that an early stage cancer will be very successfully dealt with.
Keep chatting in the group and you will find lots of others doing very well.
Sarah xx
