Hi, I am 38 and have two children 17 and15,
My story so far, I had my smear on the 22nd January, on the 9th feb came back as abnormal, got referred on the 14th had my appointment they found a marble sized lump on my vagina wall and done a LLETZ there and then! They took 5 biopsies (witch I thought was a lot)
this week has been so hard and my head has gone to some very dark thoughts! I have had 5 people (family and best friend) die of cancer in the last 3 1/2 years. I haven’t been to work this week DR signed me off and said to keep myself busy with the things that I love!! Finding that hard all I’ve been doing is cleaning. I haven’t told anyone only my partner as I don’t want them to worry if there’s nothing to worry about.
I don’t really have a question just wanted to chat
I’ve only ever had pelvic mri scans, usually with chest and abdomen included-so once the pelvic area was done, there was a plate thing put over my chest and abdomen and the scan was restarted to do that area.
I had a CT scan to check for spread, and when my cancer recurred I had a PET scan, which checked my whole body. I didn’t have this as part of my first diagnosis though.
Sarah xx
Yeah I had the same. I am also having a CT scan at a later time so that may check for spread.
thanks for your advice and support. Feeling a bit overwhelmed and numb, the waiting is hard. Very scared. My Mum and eldest son are arriving next week to help support my partner and be here for me.
Yes, the CT scan is to check for spread, and the mri will look at the size and exact location of the tumour. Once these results are all back they will go to an MDT (multidisciplinary team meeting) with the relevant staff-oncologist, radiologist etc to decide on the best way forward with your treatment.
The waiting is awful, and there is so much of it until treatment starts with waiting for scan results, and waiting for decisions to be made. For me it was one of the worst things to deal with in the whole process, and I found it really hard. It’s difficult to stop the worry and anxiety, so I really feel for you. But it’s good you will have family support around you. I just had my partner, and have to say that was tough at times.
Sarah xx
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