I'm looking for some reassurance or something, I'm not even sure anymore.
After 3 years in remission, I had a FDG PET CT and I have been told that there is some uptake in the para aortic lymphnodes and a nodule in my lung, all very small in volume so they can't definitively say yes or no!!!
Will it be recurrance or is there a chance that it could be caused by an infection?
They are monitoring via scans but I know have every pain, symptom and twinge going and I don't know if they are real or if my mind is playing tricks....
Any advice welcome
Hi xxHHxx and welcome to our group
I’m so sorry to read you’ve got the worry of a potential recurrence-it’s a horrible thing to have hanging over you. I had a recurrence myself so understand how devastating that can be.
All of us here are just ladies who’ve had or have cervical cancer, and we’re not medical professionals, so none of us would be able to say if it’s a recurrence or something else. It would need to be your doctor to confirm.
Your mind may well play tricks in this waiting period when you don’t know for sure what’s going on. We automatically think it’s back, and I know it’s very hard not to.
Are you scheduled to have further scans? I had an MRI, CT, PET and biopsy to confirm my recurrence. I hope you’ll know more soon. Please keep us up to date and let us know how you’re getting on.
I was just hoping there may be a chance that what lights up on the scan may not be sinister!
No further scans booked yet, I only found out the news last week and am seeing my consultant next Wednesday.
Not really sure what else she can say as she said before it's very small volume.
I very glad to see you are doing so well, what an inspirational story
Well, I took the view when I was getting investigated again that until I was actually told it was cancer, there’s a chance it was something else.
I’m not sure what else your consultant can say for the moment unless she schedules other scans or tests like an EUA/biopsy since it seems there’s not a definitive answer from the PET.
That’s a hard situation for you to be in, but try to keep hopeful that there’s a less sinister explanation if you can.
Thank you-I consider myself very lucky to have been able to have surgery, though it’s not without its consequences!
Aww..that’s kind of you to say. I just didn’t have any choice but to get on with it and trust my team.
But yes, keep trying not to think the worst at this point. I understand that’s not easy, but I tried to think that the time to worry was when there was something to worry about. Your mind can drive you crazy in the meantime, but I know it is hard to switch off.