Hi Angela
I think Mrs14 knew in herself there was something not quite right with how things were being handled. To me it seems crazy to be told to have surgery when you haven’t been given any diagnosis, but she has done what she needed to do, and sometimes we just need to speak up for ourselves and question things. I needed a massive push to go for answers because of my own stupidity at ignoring things, and put myself through probably more than would have been required if I’d gone sooner. But no point in looking back on that I suppose, although I wish I’d been more proactive. Maybe then wouldn’t be living as a “double bagger” for life, and have lost so many important bits of me!
I am here to try and support ladies looking for answers and advice, and help where I can on the basis of my own experience and knowledge now. Not to scare anyone, but to make sure they are able to speak up for themselves and get the answers they deserve.
How are you feeling today?? xx
Oh dear Sarah. I ddnt realise u were a "double bagger" you realy did get it tough . I'm weirdly excited and a little nervous but just want to get it all started so it's a day closer to the end game! I think I'll cope better when it's underway. I said to my daughter yesterday that in life I'm a Doer not a Waiter lol. So many people in my life were asking"well how's it going now?" And I was a bit deflated telling them I'm just still waiting! But onwards and upwards
Angela xx
I really enjoyed my chemo days in a weird way! Lovely recliner, lunch brought me with a choice of stuff and always cake to finish, and it was peaceful and relaxing. The staff were absolutely lovely so it was a nice day out. xx
Sarah
Yeah then at least 1 day a week we will get a bit of rest and relaxation. And il get my teeth into some good books iv set aside to bring xx
You’ll definitely get some reading done-it’s a long day. I wish they’d done radiotherapy first for me on that day and then chemo because of the water drinking and full bladder stuff. Radio team wants you to fill your bladder, and chemo team want you to keep drinking and emptying it to flush the chemo through. It was always a battle for my poor bladder to cope with! xx
Oh I see Sarah! Thats something I didn't realise. 1 wants full bladder and other wants to keep emptying it! Wow! Then I have to be thankful that my first is radio only as my chemo clinic days are Tue and wed so I won't get that until next week! Itl give me a chance to get used to 1 treatment before they're combined. Thanks again xx
I found bladder control the hardest thing of all in the whole process I think! At chemo I had to record all my wee input and output and drink all day and keep going to the loo, the last time each chemo day just before they would let me leave the unit to ensure I had emptied my bladder and done as much as I could to make my output match my input. Then off to do radio and start more drinking till I would be fit to burst with it all, and frequently did, especially when there were delays, which happened often xx
Oh Sarah it sounds delightful so looking forward to it lol
xx
I clearly had terrible bladder control, but hopefully yours will be much more efficient! xx
At the minute my bladder control is excellent so hopefully that will stand for me during treatment. Il give u an example: me and my daughter went out walking on a local trail yesterday and got carried away chatting so got a bit lost.and with no public toilets open we both needed to pee but I knew I could hold it..she however has no control and had to hide behind a tree lol. #makeshift lol...
it was funny lol xx
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