The waiting game.

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Hello all, I hope everyone is well. 

Some of you may recognise me from another forum.

To those who don't here's a brief rundown of what's happening  with me. 

I was diagnosed end of July with a 3.5cm ( thought to be 5cm at the start because of cervical stenosis) adenocarcinoma. I've had my CT, MRI and PET scans that all confirm no Lymphnode involvement or spread. The better of a bad situation some may say. 

I had my planning scan 11 days ago and I'm now waiting - not very patiently may I add - for the phone call to start Chemoradiation. I was told I'd likely get a call on a Thursday or Friday to start on the Monday. The waiting is just awful. Everything forme seems to be on hold..frozen in time but for everyone else things are just normal. 

Just needing a bit of a vent. 

Much live to all. 

  • Hi . I'm not a member of this group, just dropped by and noticed you've not yet had a reply as yet, hopefully the members will be along soon to answer. I can agree though the endless waiting to get appointments for tests and then waiting for the results is the pits. Your life does go on hold and the only thing that occupies your waking thoughts are when will the phone ring? Has the postman been? Fingers crossed you'll hear today or tomorrow as advised. I had all my treatments etc. during lockdown last year but now on the infrequent times I go out and about I look at people and wonder have you been where I was? Why me and not you - the comparisons go on!

    Once you start your Chemoradiation you'll feel a bit more in control.

    It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep writing the same thing over and over. You can amend or update it at any time. 

    Sending hugs, B xx


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  • Thank you MrsBJH for your reply. I have found myself looking at people and asking in my head I wonder has she been through this.. 

    I completely agree with needing to gain control and when treatment starts I'll feel that again. Everything is just up in the air at the minute. 

  • FormerMember
    FormerMember

    How's it going?