Diagnosed on Aug 27th confirmed with biopsy on 1st sept, had mri and ct last tuesday, experience alot of pain .. terrified and putting on a brave face for husband and kids, im 34 i have to boys aged almost 15 and 10 both are aware, my family is complete and has been for many years, my husband had testicular cancer back in 2013 and now we are doing this journey again .. feel guilt for our boys to repeat the process of treatment and the disruption to their lives, my teen is currently staying with my parents to protect me from covid and im homeschooling my 10yr old until its safe. Ive never felt as scared as i did the day my husband was diagnosed. Looking for positive stories, hoping to get in and have my op done soon to relieve this pain and get this disease gone. Dont feel able to talk to hubby or family as i feel i am bringing them down everyday, trying to hide my pain and worry it wearing me out
Hi and a warm welcome to the Online Community. It must be so hard to have gone through all these scary times once before with your husband's cancer now having to face a journey of your own must be really hard so I'm starting by sending you a great big hug.
I've a different type of cancer and as I was 67 when diagnosed didn't have to worry about the effect it'd have on a young family, especially hard during these horrid covid times but one thing is for sure you have nothing to feel guilty about - you didn't choose to have this horrible disease, it chose you. I'm sorry to read the pain you are experiencing can your GP not change your pain meds?
By joining this group you'll find that you are not alone, the members will be along to chat and reassure you and answer your questions. Once you can share your worries with others they don't completely go away but they're not so bad - it's the fear of the unknown that's the worst
When my hubby was diagnosed with prostate cancer back in 2013 I went to pieces, he virtually shrugged his shoulders! I'd sit in the Oncology waiting room whilst he had treatments looking around feeling sad for the patients there never expecting I'd be the one there 7 years later. I was scared and afraid, attended all my tests/treatments alone due to Covid (Except he did take me to & from hospital for op) Again he basically shrugged his shoulders didn't exactly help me whereas the ladies in my group were my salvation. Total strangers have become my friends and my support network. Strange the way some family and friends smother you, others shy away. It's mostly they don't know how to deal with it but your hubby should understand what you're going through.
It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep writing the same thing over and over. You can amend or update it at any time.
To find more information covering diagnosis and treatments there are pages covering most types of cancers which can be found on our Online Information and Support Section.
Macmillan Support Services also offer lots of information, support, financial guidance or just someone to listen. It’s free to call 0808 808 0000. Most services are available 8am to 8pm, 7 days a week. Have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two to three working days for replies from our expert team.
Sending you welcoming hugs B xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
Hi there
sorry to hear you’re in pain. I’ve not been diagnosed but gynaecologist apt tomorrow and I’m fully expecting to hear life changing news. I’m in agony with pains that just seem to be textbook and gps reaction to seeing my cervix was horrible.I’ve always been so good with smears and my last in 2019 was clear.if I do hear those words soon I hope to be the same as u and just want to get on with dealing with it.
if you don’t feel able to speak to your hubby, please share how you’re feeling here. We all need an outlet and people will understand.
Wishing you all the best, take care x
Hi sorry to hear your experiencing similar pains, doctors reqction to seeing my cervix said it all also, biopsy confirmed soon after, i hope its good news for you though, im expecting my mri and ct results today, my anxiety is sky high, praying for good news (well as good as can be expected) ive got everything crossed for you xx
Hi . It might be helpful to take a look at this reading material about cancer and work, you might find it useful.
Big hugs, B xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
How are you now? I hope you’re on the road to recovery x
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