Duno if this is the best place to ask

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Good morning

I dont know if this is the best place to ask or even if I should be asking! But here goes

I was diagnosed with cervical cancer in November 2024 after a heavy bleed, after some investigation it was decided that I'd have a radical hysterectomy which was done in jan 2025, iv since had the all clear and feel like iv coped with all the upheaval brilliantly, got through xmas not knowing what was gonna happen, never missed work (except planned time off after op), had to change jobs (after 14 years), ran a house with a teenage son in it, planned a wedding and went on our 1st family holiday....fast forward to just over a year after diagnosis and im having horrible nightmares  waking up in a sweat thinking im bleeding again, having nightmares that I didn't get the all clear and iv dreamed it all. Is this normal? Should I be doing something i feel like i should be thankful (which i am) and just forget it ever happened

  • Hi  

    I think sometimes that others, and ourselves, feel we should “get over it” and move on after a cancer diagnosis and treatment. Particularly if it has been successful.

    However, I think many of us in the group would understand that it’s not that simple! You might find it helpful to read this article by Dr Peter Harvey which describes the feelings which many of us have and I know I’ve found it helpful to go back and read it many times over the years myself.

    After The Treatment Finishes, Then What?

    I hope you will find it helpful too.

    Sarah xx


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  • Hi  

    I had a radical hysterectomy a month after you and there have also been times after physically recovering from the surgery when I’ve found the mental and emotional side to be a challenge - feeling like I should now be able to just get on/get back to ‘normal’ and finding that difficult to do.

    Sorry to hear about the nightmares you’ve been having - they must be a really stressful way to be woken up. It sounds like you’ve had a busy time with weddings, holidays, jobs, etc. 

    I was sorting through some paperwork the other day and I noticed on the leaflet I was given at one of my checkups about who to contact if I need anything between my three-monthly monitoring appointments that it mentions counselling is available and to contact the gynae CNS team at the hospital for a referral. So you could contact your team or discuss it at your next appointment if you have one coming up if you think this would be helpful. (I’m assuming that you’re in the UK as I don’t know what’s available in other countries.)

    I’ll list two things below I did last year that I found to be helpful both at the time and I refer back to these things on an ongoing basis. There are probably other organisations that offer these kind of things, but I’m just listing the ones I have experience of. (I’ll copy and paste URLs below but I haven’t tried putting links on this site before so I don’t know whether they’ll turn into links you can click.)

    Firstly, I signed up for the HOPE Programme which is by Macmillan and Coventry University. You can either do it by yourself online at your own pace or you can join an online group to do it together. I chose the self-directed option. https://macmillan.fuseuniversal.com/communities/3463/contents/359132

    Secondly, I have joined quite a few online sessions from an organisation called Life After Cancer. (Not sure whether it’s allowed to mention/link to outside organisations on this site, but I assume that this will be removed if not allowed.) There’s a six-week programme where you meet online with a group for two hours every week for six weeks and also individual online sessions usually an hour long about varied topics. https://www.life-aftercancer.co.uk

    I found both of the above really helpful (as well as the article Sarah has linked to).

    Sending best wishes and hugs,

    Louise x