Long story short .. I had Stage 1A Grade3 endometrial cancer in Aug 2024. Came out the blue to me as no symptoms only a teeny bleed once 10 years after the menopause.
Had a full hysterectomy and 2 lymph nodes checked ( cancer hadn’t spread luckily). Had 3 lots of brachytherapy after my hysterectomy.
This was when I lived in Durham and it was at Bishop hospital for checkups every 4 months. Absolutely brilliant and felt so ‘looked after’.
Mover to South Tyneside in July last year. The nurse was fantastic at Bishop and emailed my new doctors.
Never received my 4 months check up appointment in November so spoke to new doctors who said to contact the old hospital… I spoke to the lovely Sister there who said she would ring my new doctors as she had messaged them ( I saw the letter on my nhs app so she had done it) The Sister sent another letter to new doctors.
Secretary from new doctors rang me and said she had rang ‘Darlington’ hospital and no record of me … told her it was ‘Bishop’ I’d been at and QE Gateshead for the hysterectomy.
Secretary said she would message South Tyneside hospital and get me an appointment.. heard nothing a month later so rang the hospital who said no record of a referal .. and to ring new doctors again.
Rang new doctors and spoke to a different secretary.. she rang the hospital and called me back .. she had got me a checkup in a months time which was for Tuesday coming ( 17th Feb)
I thought brilliant at last ..3 months late for my 4 month checkup but at least it was happening.
Got a phone call Thursday saying who I was booked in to see has a clinic elsewhere so I’ll be getting a phone call Wednesday coming instead of my hospital checkup .
I just feel like Iv gone from absolutely brilliant care to being dumped and forgotten about.
You hear the word ‘cancer’ and on your mind loads and you count the days between checkups … now to have the goal post moved again just feels wrong.
Sorry for the long moan 
Hi GeordiesuzieGeordiesuzie (df77ea0210354e68946a18be1ebbcb06
The follow up guidelines for cervical cancer and endometrial cancer are broadly the same
Cervical Cancer
Clinical reviews every 3-4 months for the first 2 years
The next 3 years have follow up at 6-12 monthly intervals.
Endometrial Cancer
Clinical reviews every 3 to 4 months for the first 2 years
The next 3 years have follow ups at 6-12 monthly intervals. Often this is patient led follow up, where you are focused on recognising potential symptoms of recurrence and routine clinic visits can be replaced by telephone calls. (this is aligned with BGCS ( British Gynaecological Cancer Society) guidelines.
I think we can all feel that we want our follow up appointments to be on time, and after my cervical cancer treatment I did have 3 monthly in person appointments to be examined. I had no symptoms of my recurrence so was glad it was spotted at the appointment where I had an internal examination. I moved to patient led follow up for my follow ups after my recurrence and surgery. Things can be different for different individual cases.
You might want to post in the womb cancer group to read other ladies’ experiences with their follow ups post hysterectomy. I was always told by my consultant to report any symptoms between checkups like pain or bleeding and I would be seen as quickly as possible, without waiting for my next scheduled appointment.
If you are not happy when you have your phone call, you could request an in person appointment for peace of mind.
Sarah xx
Thank you Sarah I’ll post on the other group to see if anyone had anything similar when they have changed address.
thank you for your reply x
It must have been awkward moving areas in the middle of all this, making things a bit disjointed. Personally, I wanted face to face appointments in the first 2 years at least as that is when recurrence is more likely to occur and the risk reduces as time goes on.
There’s a lot of reassurance being seen in person I think. If I had only had a phone call, with no concerning symptoms, my cancer would have progressed unnoticed until I had actually displayed something I had noticed myself and that was pain for me and a little bleeding to alert me that there was something wrong. By that time, since I’d been seen in person, I had been scheduled for scans and a biopsy.
It sounds like you’ll need to advocate for yourself, and push to be seen. I’m presuming you don’t have any symptoms yourself which are concerning you at the moment?
Sarah xx
