Wondering if anyone had any advice of where to go next I’m at a loss…
I have had symptoms of advanced cervical cancer over the last few months, bleeding in between periods but I am on the mini pill been told this is normal breakthrough by gp, lower back pain for months, watery discharge no smell, tiredness ive had higher risk hpv in past but cleared it last few years I’ve seen numerous drs and had to go private for scans with multiple gyneacologists spending alot of money I’ve been to hospital and they don’t do anything
scans I’ve had are
smear negative hpv and cells
coloposcopy with endocervical brush where they swab slightly higher for cells (negative no bad cells) and no biopsy as nothing seen
2x pelvic mri with contrast normal
pelvic CT with contrast normal
hysteroscopy camera through cervix into womb - normal
I’ve had two ultrasound and transvaginal nothing seen
I feel i have advanced cervical cancer due to my symptoms but the dr won’t do anything due to my scans I know it’s silly with the scans I’ve had but I don’t feel right for months and im scared its higher up in endocervix and the one that isnt caught with smears and harder to detect.
im thinking of going to another gynaecologist and get a colposcopy and insist on a biopsy but its hard when i dont have a bad smear, im really worried about the back pain its stopping me from doing everyday things
i don't know what to do as i know my body and i don't feel right
Hi Ccbb5a619b
I saw your post earlier but felt unable to reply at the time. I have spent the entire “holidays” so far on my own-including Christmas Day and New Year’s Day, with my partner desperately ill in hospital for the whole time and almost dying on Christmas Eve.
I have tried hard to give you reassurance and support you, but I don’t feel able to offer more, since you cannot believe or accept that you don’t have cancer. My partner’s cancer markers on the other hand are through the roof and will be discussed at an mdt next week.
I would encourage you to think about what mochimoo has said in her post. Despite your anxiety, please try to give a thought to others with an actual diagnosis who are going through treatment, or those of us who have already had their lives turned upside down by cancer and life changing events.
I would encourage you to think too of the pressures on a&e if you can, if you still want to go there, when you have already had multiple scans and tests which have found nothing. The service is extremely busy-our hospital was trying to find 60 beds for a&e admissions on New Year’s Day-I know because I was there, and a&e is a place for the seriously ill with life threatening conditions as was the case for my partner.
I might sound harsh here, but if numerous scans and tests have found nothing in both the private and nhs sector, why do you think that a&e would have an answer, when you haven’t accepted any reassurance from medical professionals before? If they can’t reassure you, I’m honestly not sure what could.
Sarah xx
