Abnormal Smear

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Hi

I was found to HPV which caused changes to my cervix back 25 years ago. I had 2 colposcopys and was given all clear. Last year had smear that detected HPV but no  changes to cervix however this year the smear showed changes to the cervix and a colposcopy is needed.

Im really worried because I had this before. Im worried i've had this for a long time even thougth smears have been ok for yers. Also concerned how I got HPV as I have had the same partner for 11 years.

I have to wait over a month for a consultation going private, april if NHS. I'm really worried and having to wait isn't helping.

  • Hi Ali, I also had a similar experience 20years ago . Back in Oct my routine smear came back abnormal. The Hpv virus I’m told can come n go and back 20 years ago I was told I have it. It’s still theBlush . I’ve been married for 34 yrs. Anyway it’s the waiting for results which is the hardest part and if there’s anyway you can get an appointment sooner then do it. Try to keep your mind open and posiBlushve it’s the best way to deal with any situation. If you need to chat please reach out . Caj BlushMuscle tone1

  • Hi   and welcome to our group.

    I understand that you’re worried, but the hpv virus is very common and remains in your system as there’s no cure for it. However, in saying that it can remain dormant for years and not cause any issues as our immune system can usually suppress it. Most people pick it up in the early years of sexual activity, and for the vast majority it doesn’t cause any issues. Many people would never know they have it, but the screening programming is now picking it up. 

    You can never know when or from whom you got the virus, but it could have been  in your system for many years. The cervical screening test now tests for hpv first (it didn’t used to), and from there the check is for any abnormal cells, followed by a colposcopy if these are identified. Previously the check was just for abnormal cells. 

    I know it feels like you have a long wait for your colposcopy-this is very typical in post covid times unfortunately, but it’s actually not too long away. it’s your personal decision to go private if you feel you can’t wait and are prepared to pay, but you will not actually be seen much quicker than on the nhs. If they had seen something more concerning during the smear than abnormal cells, you would be put on the 2 week pathway for a quicker appointment, so I would be reassured by the fact that this is not the case for you.

    There are different levels of abnormal cells, from borderline to severe, and while severe changes will likely need treatment, the other stages may not. You won’t know the level of your cell changes until you go to the colposcopy and they have a closer examination. It’s very important to remember however that abnormal cells are not cancer.

    You could ask to go on a cancellation list for the colposcopy if you are able to attend at short notice, so that may get you seen quicker. Please keep in touch and let us know how you get on.

    Sarah xx


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  • Thanks Caj. I have a consultation 16/2, not sue when ill get colposcopy. Trying g to not think about it. How are you doing? X

  • Thanks Sarah. I appreciate your reassurance. Good to know would have been referred quicker if concens. I am worried but trying not to think about it.

    Whats your experience? If you don't mind me asking.

  • Hi  

    I have my story in my profile-if you click on my name you will be able to read it, but it might be a bit much for you as I had a cervical cancer diagnosis right from the start, and it needn’t make you anxious. You can read anyone’s story (if they have completed their profile) by simply clicking on their name. Not everyone completes this however. 

    Sarah xx


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  • Gosh Sarah! You have been through  it. Well done your still positive after everything you've been through   You're coping with a lot . Hope you are well.  Must have been awful making all the adjustments to your life.

  • Hi  

    It’s been very difficult at times, but you adjust and keep going. I’m glad to have been able to have surgery and be able to move forward. I consider that very positive compared to the alternative! 

    Sarah xx


    Community Champion Badge

    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm