The first thing I am going to say is that “I hate it”.
I am finding it really difficult to get into a routine to do the dialation. I know it is a necessary activity to avoid problems from tight scar tissue.
I had burns after EBR and brachytherapy which were pretty bad.
whenever I dialate it causes some bleeding. I know that this is normal due to the scar tissue but it does make me worry that the cancer is back.
I am a bit frightened about having an internal examination in a couple of weeks time. I’m not sure they are going to be able to see the cervix as the top of my vagina is very tight.
please tell me I’m not the only one finding this tough.
Hi Sssss
I think everyone I’ve ever spoken to about dilators feels the same, so you’re not alone with this! I didn’t have any burns to deal with from radiotherapy but that must make it extra difficult for you.
As you say, it’s important to use the dilators to keep things open but I did find it difficult to get into a routine of doing it regularly. It’s a thing I had to force myself to do, but I had no issues with subsequent internal examinations so I was glad I persevered. I tried different types of lube, and made sure I was relaxed as possible before starting but still found it a bit of an ordeal.
I was always scared about bleeding too, so I get that. Can you have a chat about this with your nurse/doctor when you go to your appointment? See if they can make any suggestions about how to make this easier for you, and make sure that before an internal is performed that you let them know how difficult you’re finding this.
I hope it goes ok for you when you go and that it’s not as difficult as you fear. The doctor should have a range of speculum sizes to try, so make sure they use the smallest one.
Sarah xx
