Catching Up

I have to keep warm these days x

Hi Beth2 

How are doing? I’m finding hot water bottles, a cosy hoodie or my furry electric blanket are helping me keep the heating off for longer these days. Does your lymphoedema have an effect on your ability to keep warm? 

Sarah xx

Hi Sarah

I'm OK, thanks for asking.  I dug out some old leg warmers I used to wear in the 1980s to add to my layers - yay I'm back in fashion lol. I've got a fairly smart long dressing gown (I think of it as my house coat) which I wear indoors to help keep the heating down.

My lymphoedema hasn't generally affected my ability to keep warm BUT 3 of my lymphie toes get cold and develop chilblains super easily - it's not so much the discomfort that bothers me but that they might be more prone to infection/cellulitis - the bete noire for all us lymphies!!!  I've yet to find comfortable outdoor shoes/boots that keep my toes warm enough on really cold days so then it's a case of staying indoors.  I went out today but not before warming up my footwear with electric boot warmers I recently bought. I've replaced the insoles of my boots with thermal ones which helps a bit xx

Hi Beth

I had several pairs of those leg warmers in the 80s which I now wish I’d hung onto, but I do have a cosy dressing gown I also wear in the house which is helpful. You seem to have done lots of useful things to keep warm, but I can understand your reluctance to be outside when it’s very cold with the effect it has on your poor toes. 

We shall just have to look forward to Spring and some better days to come!

Sarah xx

Hi Sarah , happy new year! Hope you had a lovely Christmas! I started my treatment this week, only had nausea which they have prescribed anti sickness tablets for 

Hi She111 

How good to hear from you and happy new year to you too. Let’s hope it brings good and positive news for us all. 

Good to see you’ve got started now. Keep taking the anti sickness tablets to keep the nausea at bay, and fingers crossed you’ll have a smooth run through. It’s amazing how quickly it actually does pass, though it can seem to drag at the time!

Sarah xx

Happy New Year everyone! Hope we all have the best year for our health! One week today I get my radical hysterectomy and feeling very hopeful xx

Happy New year to you MasM ! 

Not long to go now-are you all organised for your trip to hospital? What a start to the new year…but you are right to be hopeful and keep hold of the positive thought of getting rid of the cancer and starting on your recovery. 

Sarah xx

Hi 

Start brachatherapy treatment tomorrow must say getting abit anxious and worried about stupid things like what if I get diarrhoea while unable to move when staying in bed. I know is silly but when you are tossing and turning at night these things go around your head.

And it helps to air stupid questions on here where you understand. Thanks ladies

Hi DLT 

Remember, they have seen it all at the hospital and nothing will be a shock to them! It may be that you have an enema before treatment starts, but that can vary. And no question in this group is EVER stupid-every question means that someone has something they need to know and often someone here can answer it for them.

As I wasn’t able to have brachy, I can’t offer any advice or shared experience about it, but I hope it goes smoothly for you and the time passes easily for you. It’s the last big hitter at this cancer so just focus on coming to the end of this treatment and then being able to concentrate on your recovery.

Sarah xx