Catching Up

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Hi ladies

Just thought I’d catch up with everyone now we’re into a New Year to see how you’re all doing.

I know we’ve got ladies who have just started/are about to start on chemoradiotherapy and some who have upcoming surgery. Please feel free to use the group to post any worries or concerns, ask any questions, or just to let us know how you’re getting on. And for everyone who is through treatment or surgery I hope you are all doing well in your recovery. Positive stories are always a great help to ladies who are newly diagnosed.

I hope you are all managing to keep cosy in this cold weather-I can hear the wind blowing around my house this morning, so I’m staying put inside!

Sarah xx

  • I have to keep warm these days x

    I was diagnosed with stage 2A squamous cell cervical cancer (node negative) in 2017 following symptoms: persistent, watery, yellow vaginal discharge then post-menopuasal bleeding.  My treatment was a radical hysterectomy followed by chemo-radiotherapy.  My long term side effects include lymphoedema and urinary retention which I manage with intermittent self catheterisation.
  • Hi  

    How are doing? I’m finding hot water bottles, a cosy hoodie or my furry electric blanket are helping me keep the heating off for longer these days. Does your lymphoedema have an effect on your ability to keep warm? 

    Sarah xx


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  • Hi Sarah

    I'm OK, thanks for asking.  I dug out some old leg warmers I used to wear in the 1980s to add to my layers - yay I'm back in fashion lol. I've got a fairly smart long dressing gown (I think of it as my house coat) which I wear indoors to help keep the heating down.

    My lymphoedema hasn't generally affected my ability to keep warm BUT 3 of my lymphie toes get cold and develop chilblains super easily - it's not so much the discomfort that bothers me but that they might be more prone to infection/cellulitis - the bete noire for all us lymphies!!!  I've yet to find comfortable outdoor shoes/boots that keep my toes warm enough on really cold days so then it's a case of staying indoors.  I went out today but not before warming up my footwear with electric boot warmers I recently bought. I've replaced the insoles of my boots with thermal ones which helps a bit xx

    I was diagnosed with stage 2A squamous cell cervical cancer (node negative) in 2017 following symptoms: persistent, watery, yellow vaginal discharge then post-menopuasal bleeding.  My treatment was a radical hysterectomy followed by chemo-radiotherapy.  My long term side effects include lymphoedema and urinary retention which I manage with intermittent self catheterisation.
  • Hi Beth

    I had several pairs of those leg warmers in the 80s which I now wish I’d hung onto, but I do have a cosy dressing gown I also wear in the house which is helpful. You seem to have done lots of useful things to keep warm, but I can understand your reluctance to be outside when it’s very cold with the effect it has on your poor toes. 

    We shall just have to look forward to Spring and some better days to come!

    Sarah xx


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  • Hi Sarah , happy new year! Hope you had a lovely Christmas! I started my treatment this week, only had nausea which they have prescribed anti sickness tablets for 

  • Hi  

    How good to hear from you and happy new year to you too. Let’s hope it brings good and positive news for us all. 

    Good to see you’ve got started now. Keep taking the anti sickness tablets to keep the nausea at bay, and fingers crossed you’ll have a smooth run through. It’s amazing how quickly it actually does pass, though it can seem to drag at the time!

    Sarah xx


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  • Happy New Year everyone! Hope we all have the best year for our health! One week today I get my radical hysterectomy and feeling very hopeful xx

  • Happy New year to you  ! 

    Not long to go now-are you all organised for your trip to hospital? What a start to the new year…but you are right to be hopeful and keep hold of the positive thought of getting rid of the cancer and starting on your recovery. 

    Sarah xx


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  • Hi 

    Start brachatherapy treatment tomorrow must say getting abit anxious and worried about stupid things like what if I get diarrhoea while unable to move when staying in bed. I know is silly but when you are tossing and turning at night these things go around your head.

    And it helps to air stupid questions on here where you understand. Thanks ladies Heart

  • Hi  

    Remember, they have seen it all at the hospital and nothing will be a shock to them! It may be that you have an enema before treatment starts, but that can vary. And no question in this group is EVER stupid-every question means that someone has something they need to know and often someone here can answer it for them.

    As I wasn’t able to have brachy, I can’t offer any advice or shared experience about it, but I hope it goes smoothly for you and the time passes easily for you. It’s the last big hitter at this cancer so just focus on coming to the end of this treatment and then being able to concentrate on your recovery.

    Sarah xx


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