Just been diagnosed

You certainly need more information than you’ve already been given-I hope you can get some answers soon. xx

Still not heard anything. Called secretary and she says shes looked and no appointments are booked for me yet but she will get someone to phone. Nothing as of yet. Going out my mind x

No wonder you’re so anxious-they don’t seem to realise what it’s like to be sitting worrying when they drop bombshell news on you and leave you in limbo like this. It’s just horrible. xx

Hi Carlak90, 

Im just butting in on this thread that you have with the lovely Sarah, I hope you both don’t mind. 

so sorry to hear your experience, no wonder you feel as you do. I got a similar shock in my own experience due to the fact I was perfectly well (or so I thought) until one day everything went wrong, I was diagnosed with advanced cervical cancer after going to A&E with heavy clotting. Like you, I had little to no information as it was a Sunday and I had been moved from A&E to a gynaecology ward where an examination and ultra sound was carried out, I was put in a side room, told I had advanced cancer and left there for 2 days with no further info at all. Unfortunately any questions I was asking were to the gynaecologist doctors, and their hesitation in their answers just made my mind worse. 

I wasn’t as young as you, but was 39.  I was calling my partner on FaceTime to tell him as no visitors were allowed, I’ll never forget that call, it was the actual worst. I also have a son, and the guilt consumed me of what he was having to face due to what was wrong with me, however he is the true warrior, never once did it phase him, and never once was he not positive. 

I will say, once I got out of that ward and spoke with the oncology team, my questions were answered and my treatment started pretty quickly. (I was admitted and diagnosed 16-05-21 and my first day of chemo was 08.06.21, in between was filled with appointments and scans)

I’ve since discovered I have had a slightly different treatment plan than most of the ladies on here as I had 8 weeks of induction chemo before I went into chemo/radio combined and then brachytherapy. This was due to the advancement. 

Please, don’t think the worst. Like Sarah has said, it’s so bloody gut wrenchingly hard, but always remember, treatment can be so effective, and so many of us are proof of this. 

I really hope you get some answers very soon and you get your plan to smash this out the park! 

Stay strong and brave. 

Jen 

xxx

Hi Jen

Don’t mind at all- it’s good to hear experiences but so sad when they are as bad as yours and Carla’s. You’ve both had an awful time at the start..you at least got quick action and answers when you met the oncologists Jen, but it’s just heartbreaking seeing how you have both been treated by the system. To have to make a FaceTime call to break the news and be on your own-oh my goodness, that must have been so hard. Your son sounds a real star! 

Carla, Jen has done really well and got through this-another positive story for you. Focus on there being a positive outcome if you can. We know how hard it is at this stage for you, but we’re here for you. xx

Hi Jen.

Thanks for telling me your story, are u still having treatment? How do you feel now. I litrally jst want a phonecall to say we havent forgot about you. Im stage 1 but am thinking if they take sp long will it move to stage 2 xx

Hi Carlak90

I am finished treatment. I feel ok thanks, I do suffer from some after affects from the radiotherapy that I am trying to get some help with and still have some fatigue but on the whole I can’t really complain. 

I really don’t know much about time frames of moving stages however I think your oncology team will, and will do everything they can to ensure this will not happen because of waiting on treatment. 

Have you been appointed a McMillian nurse or a specialist nurse? If so, I cannot stress how amazing these people are. Sometimes it’s easier to speak with them to make sense of the situation and answer questions than waiting on your next appointment? I had a Mcmillian nurse and honestly I think if I didn’t have her I may have lost the plot entirely. 

Jen 

xxx

Hi Sarah, 

I didn’t have the best experience at the start however as time moved on I have to say, the oncology team were really good, for that I am very thankful. 

Covid played a massive part in not having people round me, it was difficult but as this was my only experience I didn’t have anything to compare it to, not sure if that made it better!

Nope. Not even spoke to a cancer doctor yet. It was just a normal surgeon that called on monday about me results after he miss diagnosed me and thought it was fibroid. He says he has passed me to cancer doctors so jst waiting to hear. Im a bit worried that that didnt do a biopsy and just took the lump straight out. As sarah said erlyer they may have disrupted cancer cells that could now be spreading xx

Ah my apologies as I did read that! 

I would be exactly the same at your stage to be honest. I’m maybe speaking out of turn, and this is only a suggestion, but have you tried speaking again with the surgeon via his/her secretary? Might be worth a go, surely they can at least tell you if your case is now in the hands of the oncology team, from there you may be able to press for a timescale as well as this stress and worry will be doing you no good at all. 

There will be discussions to be had I would have thought, and perhaps further scans, unfortunately, in most cases you will need all this done before a treatment plan is developed to give you the best care possible. 

Jen 

xxx