I first had a bleed on 12th October, since then its been an emotional rollercoaster . After being told i have cancer,the awful waiting for scans, results etc. Anyway my heads in a better place since knowing what im dealing with. Im stage 2b , it was staged at that because of the size 5cm. It hasn't spread , its in the cervix. So today I had the pre treatment meet, I will be having chemoradiotherapy followed by brachytherapy. The pre treatment scan and tattoo markers will be next week. Then treatment will start January. I was told all the possible side effects and possible long term effects. Followed by another quick examination.
I would say the waiting from being told they had found cancer, to having the scans was the worst time. The waiting time, my mind was in overdrive, filled with every negative thought possible. Cancer was on my mind 24/7. I didn't eat or sleep. The turning point was knowing what stage and what I faced going forward. I know everyone's journey and how they deal with it is different. But for me, im taking each day as it comes, im sending out positive thoughts, finding strategies to get through this the best way I can. I wish everyone the best on their journey.
I’m in the same position as you, 2b, 5cm tumour, which they found during a hysteroscopy. I almost thought I wrote your post accidentally in my sleep! I found out this week, but they said it’s gone into the parametrium, but I think only slightly, although it’s such a blur I’m not sure. That’s good you know the treatment plan, I won’t find out for another 2 weeks if I’m having 6 weeks of pre-chemo before the 6 weeks of 5 days a week chemoradiotherapy.
How long was it from being told did you get the confirmation of a treatment plan? They already had the histology, MRI and CT CAP results then the MDT before I was told anything at all. I may have said a few times, “I TOLD you I was bleeding a lot”.
Hi Yennefer, I had pet/ct scan on 18th November then mri on 21st. Multidisciplinary meeting was on 26th November, the following week 3rd December I had an appointment with consultant to go through everything, she showed me all the pictures of my scans, told me the stage, discussed the treatments i would have. Yesterday was the pre treatment meeting. Hope this gives you an idea of timelines (my experience )
When you mentioned you had read my post and thought you had written it. I had exactly the same experience. I actually thought I had written a post when half asleep. . It just shows there are others out there experiencing the same things.
I felt all the waiting from the first results to getting the scans very stressful. I found talking to some of my friends and family helpful. I avoided Google and just look on this forum.
Its just over 9 weeks from having the bleed. I still can't believe all this has happened. Its certainly been a whirlwind.
I hope you find out soon. Take care xx
It’s much better when you know your plan, isn’t it? It’s horrible having to wait for it, but I found I was much more settled once I knew mine, which was the same as yours for the same stage.
I always kept in mind what my consultant said-that he was treating me to cure me, and it will be the same for you. One day at a time, an appointment at a time, and you’ll get through this.
Sarah xx
Hi Yennefer and welcome to our group.
It can all be a bit of a blur when you first get a diagnosis and there’s so much information to digest when you’re reeling from that.
I was stage 2b too at my original diagnosis, with a slight spread to my parametrium, but as I said to Beekeeper, they are treating with a view to cure at this stage. It’s 7 years since I did chemoradiation.
I didn’t have the induction chemo you might have prior to chemoradiation, but we’ve had some discussions about it in the group, and other ladies who have gone through this have shared some very positive stories.
Hopefully you’ll have your plan finalised shortly and get started. You’ll have your focus then to get through this. Keep posting in the group, and we’ll be here to help support you through.
Sarah xx
Hi Lesley
I was scheduled to have 5 chemo treatments but only managed 4 as my blood results were not good enough for the last one and it wasn’t rescheduled. I was scheduled to have 25 radiotherapy sessions but ended up having 32 as I was unable to have brachytherapy.
If you click on my name, my story is in my profile so you can read it there if you’d like to. My situation is not the norm, but it’s what happened to me.
Sarah xx
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