Additional treatment

Hi I’ve had cancer the second time on my 50th birthday .

 and this time I had cancer all over the pelvis area and had to have a pelvic exentaration wand now left with 2 stomas. Could not have chem or radiotherapy a second time so this procedure has got rid of everything and my lymph nodes have been removed. No other treatment needed may nowivong a different tofecwoth 2 stomas. 

Tracy3210

Just thought I would pop on here to say that I had surgery for 1B2, Dec 23. I got the pathology results via a phone call, direct from my Consultant, two weeks post surgery. Sorry you have been kept waiting so long.

Thankfully the pathology results were clear and I did not need further treatment ( that is often the case I believe) 

I have had follow up checks every 3 months, then every 4 months. Will be every 6 months after Christmas. I have not had any scans during follow up just examinations and questions. 

Hope this is some comfort for you and I wish you all the best 

Serena77 

Hi Tracy

Many ladies don’t need any further treatment after surgery, and hopefully when the pathology results come back they will confirm everything has been successfully removed.

Were you given any indication of when the results would be back? 5 weeks post surgery does seem a long time to wait, so if you haven’t been given a timescale I’d recommend a call to your CNS or your consultant’s secretary to check when you will be advised. Please don’t think that you’re bugging anyone-when I was chasing something very recently with my consultant’s secretary and apologised for being a nuisance, she said not to worry-that’s what they are there for.

It is positive that your surgeon thinks everything is gone, and please be aware that even if you did need some more treatment, this would NOT be the exenteration surgery and stomas mentioned in one of the posts- your situation is not one of a recurrent cancer, which is very different.

Sarah xx

Thank you for your replies! They did say it can be between 4 and 6 weeks as the lab is busy - it just seems to be very long and obviously anxious time. Can I just check was your 3 month checks in person? I received an appointment for a telephone appointment only and not in person. Thank you again!

Hi,

My  post surgery checks were in person as they involved an internal examination

Serena77

Hi Tracy3210 

I had a radical hysterectomy with lymph nodes and ovaries removed for stage 1B2 in February and haven’t required any further treatment after surgery.

My in-person appointment for the results from pathology was 4 weeks after surgery and was made at fairly short notice - once the results were back, I got a phone call to see when I could attend within the next few days as they couldn’t make the appointment until they knew my results were there. At this appointment, there was a discussion about the results, a chat about how my recovery was going, an opportunity to ask any questions and a look at the scar to check how it was healing. 

I have in person checkups every 3 months which include a discussion about how I’m doing and an internal examination. I had a couple of telephone appointments with my CNS in the first 3 months after surgery to check how my recovery was going and address any questions or worries I had. 

As others have recommended, I would suggest contacting your CNS to check if there’s any update on when your pathology results are expected and to ask what the telephone appointment is for. 

Best wishes for your surgery recovery and hope you don’t have too much longer to wait for your results.

Louise x

Tracy, I’d recommend asking for a face to face appointment when you get your phone call if they don’t suggest it for you. 

You really need to have a check up to see that everything is healing well. Even though I didn’t have surgery as my first line of treatment, my check ups were in person to have a chat, have a feel of the lymph nodes in my groin and tummy and have an internal examination. 

After surgery, it’s common to have a post op check up in person to check healing-I’ve had other surgeries and always had this.

Sarah xx