Got the "we need to talk to you" call today

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Hello all!

So I had a call today from the admin in the colposcopy dept of my hospital to ask if I could go in for 3pm, (in 3 hours from the time of the call), as they wanted to discuss my results.

Having already been on the receiving end of one of the calls when I was diagnosed with MS 8 years ago I knew straight away that this wasn't going to be good news. (And I said so).

So arriving at the hospital I was promptly seen and told that from my biopsies taken 3 weeks ago they showed "moderate" cell changes, but also behind that some cancerous cells. 

Obviously tears started streaming straight away as I'd managed to convince myself it was just too much of a cosmic joke to give me MS and cancer, but alas I was proved wrong. 

So now is the wait for the MRI to find out what exactly is going on in there, but the word hysterectomy is being thrown around a lot. Luckily I am done with having children having had my last 7 months ago. 

So this has understandably ruined my maternity leave and now have a possible 10 working day wait for the MRI, to then have a further wait!

I am not a patient person and we all know the wait is the worst! 

Feeling all the feelings right now but still don't really know what to think so just telling myself to just go with it until I get the call for my scan

  • Hi  and welcome to our group.

    I’m sorry you’ve had the shock of getting a cancer diagnosis-it’s always a scary thing for us all to hear, and it takes a bit of time to get your head round it.

    Unfortunately there’s a lot of waiting until the scans are done and treatment is confirmed, but it’s important to have as much information as possible before a plan is decided. That doesn’t mean the waiting is easy, and we’ve all I think felt the same about that so I completely get where you’re coming from.

    Two weeks is not actually too long to have to wait for the scan, but yes, there will be a further wait for results. All of your test and scan results will then  of all go to an MDT meeting (multidisciplinary team meeting)  where the medical staff involved in your care (oncologist, radiologist, pathologist etc) will reach their decision.

    It’s actually a positive that it’s “just” cells that have been found rather than a tumour and that the expectation is that you’ll have a hysterectomy as this would suggest an early stage cancer. Surgery is usually only possible when the cancer is at an early stage, and would hopeful be all that is needed to deal with this.

    At the moment this limbo time while you’re waiting is one of the hardest points to cope with, but most of us find that things become easier once we know what we’re dealing  with and what is going to happen next. 

    Please keep us updated and let us know how you’re getting on-a number of ladies in the group have had a hysterectomy, so if this is what you need I’m sure they will join in with their experiences. You’re welcome to be here and please ask any questions you think of if you need to. 

    Sarah xx

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  • So sorry that you are going through this. It must be incredibly hard with a young family to take care of. The waiting is the hard part... I never found any of the scans etc troublesome but my mind went crazy. Talk about up and down.    I was climbing the walls one minute and then just emotionally drained the next. It's hard but sounds like you are quite luckily early stage if hysterectomy is being discussed so take that as a positive! I had my hysterectomy 9 months ago so if you have any questions fire away. For now ... Good luck..  don't forget that we have all been there and got through it just as you will. Always here if you need to sound off or need help.  xx