Hi there! So I’ve had a bit of a weird day, to say the least. I’ve been having menstrual issues for a couple of years and had a few tests. Last year I was given a Mirena for excessive pain and irregular periods, and a few months ago I was prescribed Norethisterone as the Mirena wasn’t working. Biopsies were taken and then referred to another hospital. Fast forward to this morning and me and my family’s last day of a wonderful weekend at a caravan park, and I get a call from my consultant saying a lesion had been found on my cervix and I had to make my way to hospital for a blood test in order to attend an urgent MRI.
So, a great day 
In all seriousness my head is in a spin. I took the phone call as we were literally cleaning up the caravan before checkout. I feel like I can’t trust anything I remember from what she said on the phone because my head was everywhere, but I made it to hospital and got my blood test. And she mentioned that “small cells” were found but she has a very strong accent and I’m not sure if I misheard. God, my head is a mess and I don’t even know what I’m looking for.
Hi Bobbylou and welcome to our group.
What an unpleasant end to the holiday for you. It’s difficult to take things in when you get a phone call like that when you’re not expecting it, so it’s no wonder you’re not sure what’s going on.
So, you’ve had your mri and now it’s a case of getting the results to see what will be next. You will be worried, I can understand that, but try not to let your mind run away with thoughts at this point when you don’t know anything.
You could phone your consultant again to ask to go over what has been found so far from the biopsy just so as you have a better understanding. Just say you didn’t catch everything in the phone call and you’d like her to explain again. You might find that helpful.
I hope it won’t take long for your scan results to come through-we all know how horrible the waiting is. You’re welcome to post as much as you need to in the group with questions or worries, and there will be support here to help you through if you have a cancer diagnosis. Please keep us posted with how you’re getting on.
Sarah xx
Thanks for this reply 
️ Reading back over what I wrote last night now and it looks like nonsense in the light of day! I haven’t actually had the MRI yet, just the blood test to check my kidney function and see if an mri is safe? My bloods are fine so now I just have to wait for the mri which she said would be done as a matter of urgency. Talking to my consultant is difficult as she’s working from home and of course her secretary can’t give me much info. It’s just all so confusing right now
Ah, I see-so you still have to have the mri. I’ve misunderstood, sorry. I’ve not heard of having a blood test to see if an mri is safe to do, so that’s a new one on me! It’s usually all about checking kidney function. There’s probably not much more you can find out for now until they have more information so it can be tough waiting. Have you actually been told it’s cancer at this point?
Sarah xx
I think you’ve been given some confusing information so far by the sound of things. Small cell is a type of cervical cancer but I’m not sure what is meant by “small cells”. Cells are graded on levels of abnormality in a diagnosis of pre cancer or cervical cancer so it’s strange to hear them described in this way. Not all lesions are cancerous, but the results from the biopsy should have confirmed whether it is or not.
It must be very difficult to deal with a consultant who works from home-I’ve only dealt with consultants who are based in hospitals and work from there. How will you have a face to face appointment for results?
Sarah xx
Good advice
Medical staff assume we understand all the medical jargon but this is all new for us. I remember when my nurse phoned and was reeling off all these things and I just said stop! I made her repeat everything slowly and explain the acronyms, which to be fair she did. I asked her to go over one thing at a time and explain what it was, when it would happen and when I would hear back.
Keep a notebook if you canBobbylou and write down what you’re told so you can review it later. It’s hard to absorb everything and it’s useful to be able to go over it. Make sure you are clear in your own mind about everything and that you understand. It’s their job to make this happen, and it’s too important not to. Keep in touch.
Sarah xx
Thank you Sarah and Babydragon. Your comments urged me to give my consultant a call and explain that I hadn’t been in a mental space to take in much info. So I have more info now:
1) she said SMOOTH cells, not small cells. 
2) it’s a granular cell tumour, and they suspect it’s fast growing because there was no sign of it at my biopsy last year. The MRI is in order to see how far it goes, or if it’s localised, hence the urgency.
3) she mentioned it was quite rare so I’ll be dealing with a few different specialists
still confused and anxious but I think that’s par for the course, rather than the product of having the wrong info. I just have to wait for the MRI now.
Hi Bobbylou
I’m glad you made the call and found out more. Being anxious is definitely par for the course, but I found things settled down for me mentally once I knew exactly what I was dealing with. It sounds like you’ll be having the mri very soon, so hope you won’t have to wait long for the results and to get a plan of action.
Sarah xx
Hi clg03
Yes, I remember all of those, with and without the contrast dye used. I hadn’t heard of a blood test to make sure an mri was “safe” to have, which confused me though! Many blood tests to test kidney function all along the way however.
Sarah xx
