Day of defeat

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Hope you guys are all getting on as well as can be and made the most of the Easter. I just need to vent I guess. Have started second week of treatment and I just don't know how I'm going to get through. It's only the beginning. I literally feel like I'm on another planet. Can't put into words how my body feels. I ache. My taste buds seem to be non existent. I'm so fed up and fear it's only going to get worse 

  • Oh 

    I’m sorry you’re finding it so tough so early on in the treatment-I did well till week 3 before it really hit me. Yes, it might get worse as treatment goes on, but it’s only a few weeks and then it’s done. Rest, sleep when you need and try to find the strength to continue, just a day at a time. Every day you get through is a day nearer the finish line. We nearly all found it hard going, but if you want rid of the cancer, you have to do it. There’s no other choice other than giving up, and that is much worse than any treatment. Keep going! One foot in front of the other. 

    Sarah xx


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  • I thought I did well the first week I was quite positive and getting on with it. Not sure what's happened over the weekend I just felt all over the place and I feel mentally low now 

  • Well, it’s understandable-the whole process makes us very up and down mentally, but try not to spend too much time feeling low if you can. Do things to distract yourself and take your mind off things-watch tv, a film, phone a friend. Anything that makes you feel a little better.

    I think we do all need to try and do the best we can to help ourselves get through by whatever way we can manage. I spent a lot of time having naps because I was exhausted! 

    Sarah xx


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  • Problem is I think I feel alone. I know I'm supported and have people around me but I will sit in a group and feel lonely. Hoping I will snap out of it and its just a low phase. Hope your doing OK 

  • It’s really good you have people round you, honestly. I had my partner and that was it. No-one else. I would have loved to have had people to visit, maybe go out for a coffee, but I didn’t have any of that. I just had all my time alone except when I was having treatment.

    It can be lonely when you have an illness and are having treatment because other people don’t really understand and don’t know what to say. Sometimes they don’t say anything at all and that can feel isolating. 

    But having family and support is really good, especially if the treatment is giving you side effects. At least you will have some help, and hopefully that will make things a little easier for you.

    Sarah xx


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  • Thanks for that today its helped speaking. Sounds like it has been very difficult for you 

  • I had some tough times, more so when my cancer recurred because I was in so much pain. But I said right at the start when I was first diagnosed I would never give in, and I would be as positive as I could be, which I think helped a lot. The mind has a powerful effect on the physical, I believe. So I did it a day at a time, an hour at a time some days when the pain was bad. I found positive quotes to repeat to myself every day, and I kept going. 

    I do feel sad that you use the word “defeat”. Try not to use negative words like that if you can, as it puts you in a more negative frame of mind immediately and makes things harder to deal with. I know it’s hard. I understand that, but I learned a lot about coping, going through this cancer twice and knowing it might be the end for me. I’d really like to try and encourage you to try and think along more positive lines. 

    Sarah xx


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  • I think your incredible. Positive mindset does make a difference your right. I can't give up I have to get through. 

  • Yay! That’s more like it!

    Please don’t give up-keep pushing through, and think of how good it will feel to put this behind you. Be proud of yourself-I’m proud of you for keeping going. A few weeks and treatment will be done.-you CAN do this.

    Sarah xx


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  • Hi LJ 

    So sorry to hear you're getting it tough ATM. Believe me I also felt like giving up quite a few times. But I spoke to my consultant every Tue morning before chemo and told her how I felt on a weekly basis. Mostly I felt weak and sick so she was able to up my anti sickness meds and extra steroids. Then I couldn't sleep and she prescribed sleeping pills for a few weeks and all these things helped. Tell them how you feel. I also found myself feeling alone because no matter how well intentioned family are, we still.do the battle alone! So I completely get it. I had all my appointment dates/times typed out so I ticked them off after each treatment and once I got to half way, I thought " one more half to go" it realy helped to see each daily/ weekly treatment ticked off my list. My gp has put me back on anti depressants as my mood was actually low once treatment finished. Maybe you can ask your consultant about having something to lift your mood? It's a horrible disease and treatment is equally horrible but you CAN do this. One day soon you'll look back and think how quickly it actually went, it just dosent feel that way now. Please speak to your team about how you feel, you realy could use a bit of help. Best of luck.

    Angela xx