Hard times indeed

That's good you've got a date to start, shame we won't be there at the same time. I was weekly in the five day unit last time but I'm three weekly in the other bit this time.  The new thing for me is having to take a bunch of steroids at midnight the night before and 7am the morning of chemo.  Fun!! Usually need to set alarm for the midnight one as I can't stay up that late lol! 

I'll only be 3 ahead of you so we can compare notes as we go along x

I would defo need to set an alarm for the steroids at that time. Last time I just took them in the mornings for 2/3 days after treatment. I’m sure I’ll find out if it’s different this time. 

Yes, we can compare notes, I’m hoping with it being 3 weekly it might be kinder as last time was weekly and I just felt like I was just recovering from it then getting pumped full again…. So break if you like? 

Jen 

Yes I've been finding that I feel crappy for about five days then I'm fine for the next couple of weeks. I've even been working albeit from home, during the two good weeks.  I feel robbed of my two good weeks this time because of the leg swelling issue, it's totally affecting mobility which is so frustrating as I've never had any problems with my mobility before.  

Yep still need to take dexamethasone on day two and three as well as the ones beforehand. I'm sure Dr Sanders said that the three weekly chemo is three times the potency from what I had weekly?

My hair came out just before the second chemo, I wasn't sure what to expect with the change of cycle to 3 weeks. I didn't like the wig last time but thought I'd give it a go with a new one.  Have an appointment at Maggie's next week for that, should have been last week but had to rearrange as daughter was covid isolating! 

Wendy

I have my induction on Tuesday so I’m sure I’ll get more info if not I’ll be asking questions. 

I’m not overly excited about any of it, feels like I’ve hit a brick wall this afternoon. Hopefully tomorrow will be easier 

Jen 

xx

No it's certainly not fun. Hope tomorrow is a better day xx

Hope you're keeping ok..I've been a little panicky thinking about my frist scan but trying to take my mind of it doing things then it comes back..I've been walking more took the dog's out 2day...pulled a little but not to much xxx

1. 470132 sorry to hear this I'm waiting on my frist scan end of May..so hard trying not to think about it..I finished my treat 4 weeks ago..I was staged at 3c1 so that was a shock coz at frist it was 2b..how when did you finish treatment xxx

Hea Nahla

I finished treatment 22nd September. First scan was Dec and NED. Second scan was end of Feb and here I am! 

Hope your scan goes well

Jen 

What a shock for you...we all worry about the scans or getting symptoms b4 our scans..I try not to think about it my frist scan but it's impossible....what stage were you at what treatment did you have..xxx

Yea it’s not been the best of weeks however a week today I’ll hopefully have some drugs in me that can control it. 

I’ll be honest, I didn’t want to know a stage as at the start I really struggled with the information, I was absolutely terrified and couldn’t handle any more. That may sound strange however it helped me. I still don’t want to know what stage it was! 

The tumour on my cervix was 5.5cm, it was in my uterus and local lymph nodes as well. Between diagnosis and treatment starting it was really quick, about 3 weeks. This time it’s again very quick and only 2 weeks. 

I think this time I knew the scan wasn’t going to be good, just with the way I felt and the symptoms I was experiencing. The first time I hadn’t noticed any symptoms so the shock was real. 

Jen 

xx