Hi all, I’m new on here, I live alone with my 2 dogs, I have 2 grown up kids who are very supportive and who have been through a lot this last few years. I was diagnosed with grade 1 breast cancer (2 small tumours) last year and was told it was early stage ‘bread & butter’ breast cancer which hadn’t spread to lymph nodes. Had a full mastectomy and was fortunate enough to have through work comprehensive cancer cover care ao was able to undergo chemo in private healthcare. The chemo set off sciatica so they did a full spinal mri, followed by CT whigh showed that there was something suspicious on one vertebra with a couple of ‘flecks’ on my pelvic bone. The MDT decided ‘we’ll just treat it as cancer’ but although in a difficult area, close to aorta and spinal cord I insisted they did a biopsy. I needed to know was it cancer or not! 3 weeks on from biopsy yesterday was diagnosed with met bone cancer; spread via blood stream. Whereas one tumour in breast was low amplification HER2+ this tumour in vertebra was HER2+3 so turns out good job biopsy was done, the oncologist said, because now it can be targeted with the correct drugs. So I’m going to be put on Debosumab and Phesgo and monitored every 3 months. Does anyone have a similar story or experienced being on these drugs. I’m concerned that the cancer will pop up somewhere else! I experience discomfort in some joints and not sure whether this is related. I’m quite active and walk every day and attend gym twice a week, do struggle with a bit of fatigue but try to work through it. I’ve had no symptoms of pain etc in part of back where cancer has been found - stumped and shocked by diagnosis and struggling to accept position and thought of living with cancer and what future will hold and for how long. I Work full time, office based although work have been great and I can work from home and I worked through all of my chemo treatment. Sorry for long post just needed to get it out somewhere without burdening friends and family. Any info, experience or thoughts would be much appreciated. Thanks
Thanks Lee for your response. I’m hoping they’ve caught this really early, albeit by chance, otherwise I would have rung that bell and gone off not knowing that cancer had manifested itself into my bones and where it would have gone without further treatment!
I must admit I find sitting uncomfortable for long periods but put that down to bulging discs in lumbar and degenerative arthritis in that area rather than the tumour in my T10 vertebrae. Hoping to keep going for as long as possible but some days it’s hard to keep positive and see past the negativity of the big C! The oncologist says think of it as living with diabetes, not curable but manageable with treatment but you can’t help worrying every time you feel a twinge or feel slightly unwell! It’s coming up to a year since my breast cancer diagnosis and hopefully my follow up mammogram will show nothing in my remaining breast. 
x
