Help!!
I’m trying to find anyone with the same diagnosis as me as I am going slightly mad with the rollercoaster!!
Timeline:
Dec 2023 - Diagnosed at 50 with Left breast cancer- 2 tumours ( 1 x IDC and 1 x DCIS)
Jan 2024 - Left WLE and SNB - grade 3 IDC and DCIS, HER2 negative, 0 lymph nodes but Oncotype was 47 ( very high risk of recurrence)
April 2024 - Started chemotherapy (EC x 4 and Paclitaxel x 4)
Sept 2024 - Radiotherapy x 5 days
Jan 2025 - first Zoledronic acid infusion
Jan 2025 - started Letrozole
May 2025 - diagnosed secondary breast cancer metastasis in my Brain
June 2025 - had brain surgery to remove 95% of tumour due to its location
July 2025 - brain tumour histopathology is now HER2 positive!
July 2025 - Sterotactic Radiosurgery next week x 3 to zap the remaining brain tumour
Yesterday - Oncologist has given me a poor prognosis and wants me to start more chemo Docetaxel x 6 plus PHESGO to try and prevent more mets coming up for as long as they can
Is there anyone that’s gone through/ going through this ?? I just don’t know what to do for the best anymore. I’ve done everything to stop it coming back but it hasn’t worked! I was just getting my life back on track and recovering and now feel I have no hope
Thanks
