Secondary breast cancer brain tumour metastasis, brain surgery, SRS, Docetaxel & PHESGO Help!

Hi MURKA 

I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Thanks and done x

Hi there 

I was diagnosis with metastatic breast cancer just a month before you and am around the same age so I have some idea of how crazy you will be feeling now. I had a scan just a few months ago to check my brain as I have had terrible headaches. I also know one of the other ladies in my support group who has had a met on her brain. It is so scary.

The good news is that the radiotherapy will work and along with the new meds it will help. Often doctors prognosis is worst case so it sounds doom and gloom. If they have given you a course of treatment then they are weighing up that the chances are more likely to be good for you than not. Hold on to the hope!  

Hi TheaT

thank you for your message and you’re right it does all seem like doom and gloom at the moment for me but am clinging on to hope knowing that the next 6 months will be awful again on chemo etc but hope that better days will come and that I can regain some normality in my life whilst recovering and knowing that I’m doing all I can to stop this awful disease in its tracks for as long as I can.

Sending kindness X

Hi MURKA,

I have similar history to you, including the brain mets, so wanted to drop you a line as there aren’t many of us on here.

See my profile for details:

 Fliberty 

You are not alone but it can feel scary and lonely at times. Thankfully there are lots of treatments, particularly for HER2+, so there is still hope for us.

I hope your radiotherapy has gone well, Fliberty